BackgroundRetinoblastoma is a rare childhood ophthalmic cancer that requires frequent eye examinations under anaesthesia and painful or distressing procedures. This can cause significant anxiety for children and their families.ObjectiveWe evaluated a Starlight Children's Foundation programme, ‘Captains on Call’, at the Queensland Children's Hospital, which aims to provide positive distraction and reduce stress, anxiety and pain during the perioperative journey for children in the retinoblastoma treatment pathway. This study examined the impact of the programme on the perioperative experience of the children and their families, using a qualitative design.MethodsThis study was conducted in a paediatric operating suite at a tertiary‐level children's hospital in Australia. We interviewed a parent from 20 families (from a cohort of 40 families, including 44 children), whose children received treatment or screening for retinoblastoma, focusing on the programme's impact on the child and family at various stages during the perioperative journey. We undertook a thematic analysis of transcribed interviews.ResultsWe identified two themes, each with two sub‐themes: (1) the programme positively contributed to the overall treatment journey, by addressing different needs at different times, and helping to reframe a traumatic medical experience, and (2), the programme supported the whole family unit by empowering children through play, and adopting a family systems approach which recognised the impact of cancer treatment on the whole family.ConclusionThis study highlights the value of the Captains on Call programme in supporting children with retinoblastoma and their families during perioperative visits. The Captains, particularly as non‐medicalised professionals in a healthcare setting, built trust and rapport with the children through play over repeated episodes of care. The interprofessional collaborative approach with a reflective cycle of practice extended it beyond a programme providing simple distraction. Other retinoblastoma services may benefit from implementing a similar approach.

中文翻译：

---

值班队长：对支持视网膜母细胞瘤儿童接受定期眼科检查的干预措施进行定性调查

背景视网膜母细胞瘤是一种罕见的儿童眼癌，需要在麻醉和痛苦或痛苦的手术下频繁进行眼部检查。这可能会给儿童及其家人带来严重的焦虑。 目的我们评估了昆士兰儿童医院的星光儿童基金会项目“Captains on Call”，该项目旨在为儿童提供积极的分散注意力并减少围手术期期间的压力、焦虑和疼痛在视网膜母细胞瘤治疗途径中。本研究采用定性设计，探讨了该计划对儿童及其家庭围手术期体验的影响。方法本研究在澳大利亚三级儿童医院的儿科手术室中进行。我们采访了来自 20 个家庭（来自 40 个家庭，包括 44 名儿童）的一位家长，他们的孩子接受了视网膜母细胞瘤的治疗或筛查，重点关注该计划在围手术期各个阶段对孩子和家庭的影响。我们对转录的采访进行了主题分析。结果我们确定了两个主题，每个主题都有两个子主题：（1）该计划通过满足不同时间的不同需求，并帮助重塑创伤性医疗体验，对整个治疗过程做出了积极贡献，（2），该计划通过游戏赋予儿童权力，并采用认识到癌症治疗对整个家庭影响的家庭系统方法来支持整个家庭。结论这项研究强调了“Captains on Call”计划在支持方面的价值视网膜母细胞瘤儿童及其家人在围手术期就诊。队长们，特别是作为医疗机构中的非医疗专业人士，通过重复护理的游戏与孩子们建立了信任和融洽的关系。跨专业协作方法和反思实践循环将其扩展到提供简单干扰的计划之外。其他视网膜母细胞瘤服务可能会受益于实施类似的方法。