Natural and human-provoked disasters pose serious health risks to children, particularly children and youth with special healthcare needs, including many cardiology patients. The American Academy of Pediatrics (AAP) provides preparedness recommendations for families, but little is known about recommendation adherence. Caregivers of children seen in a pediatric cardiology clinic network were recruited to complete an electronic survey. Participants self-reported child medical history and their household’s implementation of AAP recommended disaster preparedness items. Families received a link to AAP resources and a child ID card. Data were analyzed using descriptive statistics with Fisher’s exact and Wilcoxon rank sum tests. 320 caregivers participated in the study, of whom 124 (38.8%) indicated that their child has a diagnosed cardiac condition, and 150 (46.9%) indicated that their child had special healthcare needs. The average preparedness item completion rate was 70.7% for household preparedness, 40.1% for reunification preparedness, and 26.3% for community preparedness. Households of children with medical needs had similar rates of preparedness compared to overall rates. Of all respondents, 27.8% previously received disaster preparedness resources, 67.7% would like resources on discussing disaster preparedness, and 93.0% intend to talk with their household about disaster preparedness after completing the survey. These results demonstrate a gap between AAP recommendations and household-level disaster preparedness, including patients with cardiac conditions and those with special healthcare needs. Families expressed that they were interested in getting resources for disaster preparedness. Pediatric cardiologists may consider asking about disaster preparedness and providing disaster preparedness resources tailored to the needs of their patients.

自然和人为引发的灾害对儿童，特别是有特殊医疗保健需求的儿童和青少年（包括许多心脏病患者）构成严重的健康风险。美国儿科学会 (AAP) 为家庭提供了准备建议，但人们对建议的遵守情况知之甚少。招募了在儿科心脏病诊所网络就诊的儿童的护理人员来完成一项电子调查。参与者自我报告了儿童病史以及其家庭对 AAP 建议的备灾项目的实施情况。家庭收到了 AAP 资源的链接和儿童身份证。使用费舍尔精确检验和威尔科克森秩和检验的描述性统计分析数据。320 名护理人员参与了这项研究，其中 124 名（38.8%）表示他们的孩子患有心脏病，150 名（46.9%）表示他们的孩子有特殊的医疗保健需求。家庭准备的平均准备项目完成率为70.7%，团聚准备为40.1%，社区准备为26.3%。与总体比率相比，有医疗需求儿童的家庭的准备率相似。在所有受访者中，27.8%的人曾经获得过防灾资源，67.7%的人希望获得讨论防灾资源的资源，93.0%的人打算在完成调查后与家人讨论防灾问题。这些结果表明，AAP 的建议与家庭层面的备灾工作之间存在差距，包括患有心脏病的患者和有特殊医疗保健需求的患者。家庭表示他们有兴趣获得防灾资源。儿科心脏病专家可能会考虑询问备灾情况，并根据患者的需求提供量身定制的备灾资源。