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“They didn't think we'd do it!”: Community gardening as an act of resistance for people with dementia
Journal of Aging Studies ( IF 2.707 ) Pub Date : 2024-02-29 , DOI: 10.1016/j.jaging.2024.101216
Sarah Swift , Nicholas Jenkins , Margaret Brown , Marjorie McCrory

People living with dementia commonly report negative experiences such as disempowerment, stigma, and oppression. Community gardening has demonstrated its potential as a forum for the practice of resistance against the oppressions experienced by other marginalised groups; however, this element of the experience of community gardening has yet to be explored in the context of dementia. A collaboratively-designed community gardening project took place over six weeks, involving six people with dementia. The participants selected all activities undertaken in the garden. Data were collected through semi-structured group interviews with the gardeners and researcher observations. Context-setting semi-structured individual interviews were conducted with four day centre staff members, and three key informants who had experienced working with people with dementia in the garden. The garden acted as a platform for the articulation of both verbal and embodied expressions of resistance against the disempowerment and loss of agency experienced by many people with dementia. The participatory design of the gardening sessions enabled the gardeners to assert their autonomy and independence, and defy the negative stereotypes associated with dementia, which some of the group members appeared to have internalised. Community gardening activities may offer a forum for expressions of resistance against the structures oppressing individuals with dementia. However, in order for this potential to be unlocked, such initiatives must be collaboratively designed, following an approach which recognises the strengths and enduring abilities of people living with dementia. Additionally, the empowering impact of community gardening should not be diluted by positioning the activity as a substitute for adequate statutory health and social care provision, thereby individualising responsibility for the wellbeing of people with dementia.

中文翻译:

“他们认为我们不会这么做!”:社区园艺是痴呆症患者的一种抵抗行为

痴呆症患者通常会经历一些负面经历,例如剥夺权利、耻辱和压迫。社区园艺已经展示了其作为抵抗其他边缘群体所经历的压迫的实践论坛的潜力;然而,社区园艺经验的这一要素尚未在痴呆症的背景下进行探索。一个合作设计的社区园艺项目历时六周,涉及六名痴呆症患者。参与者选择了在花园里进行的所有活动。数据是通过对园丁的半结构化小组访谈和研究人员的观察收集的。我们对四名日间中心工作人员和三名有在花园里与痴呆症患者打交道的经验的关键知情人进行了背景设定的半结构化个人访谈。花园充当了一个平台,表达了对许多痴呆症患者所经历的剥夺权力和丧失能动性的言语和具体表达的抵抗。园艺课程的参与式设计使园丁能够维护自己的自主性和独立性,并打破与痴呆症相关的负面刻板印象,而一些小组成员似乎已经内化了这种刻板印象。社区园艺活动可以为表达对压迫痴呆症患者的结构的抵抗提供一个论坛。然而,为了释放这一潜力,必须共同设计此类举措,并遵循认可痴呆症患者的优势和持久能力的方法。此外,社区园艺的赋权影响不应因将活动定位为充分的法定健康和社会护理服务的替代品而被削弱,从而使痴呆症患者的福祉责任因人而异。
更新日期:2024-02-29
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