To address sexual and reproductive health (SRH) concerns among people with cystic fibrosis(PwCF), the CF Foundation created the Sexual Health, Reproduction, and Gender Research (SHARING) Working Group. This report summarizes CF community SRH research priorities and workshop discussions/future study planning. Pre-workshop, we distributed a community prioritization survey on CF SRH research/care. During the workshop, we used results and reviewed existing research to establish research priorities and design studies to address identified knowledge gaps. A total of 303 respondents (85 % PwCF, 15 % caregivers) completed the survey. Highly-rated SRH topics were: 1) effects of CF modulator therapy on sex hormones; 2) effects of sex hormones on CF; 3) fertility; 4) pregnancy; and 5) SRH/mental health. Twenty-four workshop participants established the need for further research on sex hormones and CF, optimizing SRH care provision, and fertility/ART. SRH is an important and emerging area in CF and thoughtful consideration of community perspectives can ensure that future research is relevant and responsive.

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优先考虑囊性纤维化患者的性健康和生殖健康研究和护理：囊性纤维化基金会性健康、生殖和性别（共享）研究工作组 2023 年研讨会报告

为了解决囊性纤维化患者 (PwCF) 的性健康和生殖健康 (SRH) 问题，CF 基金会成立了性健康、生殖和性别研究 (SHARING) 工作组。本报告总结了 CF 社区 SRH 研究重点和研讨会讨论/未来研究规划。在研讨会之前，我们分发了一份关于 CF SRH 研究/护理的社区优先顺序调查。在研讨会期间，我们利用结果并审查了现有研究来确定研究重点和设计研究，以解决已发现的知识差距。共有 303 名受访者（85% 普华永道，15% 护理人员）完成了调查。评价较高的 SRH 主题有：1）CF 调节剂治疗对性激素的影响；2）性激素对CF的影响；3）生育能力；4）怀孕；5) SRH/心理健康。24 名研讨会参与者确定需要进一步研究性激素和 CF、优化 SRH 护理服务以及生育/ART。SRH 是 CF 中一个重要的新兴领域，对社区观点的深思熟虑可以确保未来的研究具有相关性和响应性。