Resources including Patient Decision Aids (PtDA) are useful and valued by patients and clinicians to provide information and complement shared decision-making. Despite their promise, few PtDA exist for patients with genetic cancer susceptibility facing difficult decisions about risk management. We aimed to fill this gap, partnering with patients to codesign Lynch Choices^TM, a PtDA website for families with Lynch Syndrome. In addition to a Patient Reference Panel, we purposively invited an international stakeholder panel including charities, public bodies, clinical and academic experts. Implementation strategies and frameworks were employed to optimise translation of research findings to improve care.

中文翻译：

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Lynch ChoicesTM 的协同设计：利用实施科学创建临床可交付的患者决策支持网站，以改变癌症遗传学护理途径

患者决策辅助 (PtDA) 等资源对于提供信息和补充共同决策非常有用且受到患者和临床医生的重视。尽管有这样的承诺，但对于面临风险管理困难决策的遗传性癌症易感性患者来说，PtDA 却很少。我们旨在填补这一空白，与患者合作共同设计 Lynch Choices ^TM，这是一个面向林奇综合症家庭的 PtDA 网站。除了患者参考小组之外，我们还特意邀请了一个国际利益相关者小组，其中包括慈善机构、公共机构、临床和学术专家。采用实施策略和框架来优化研究成果的转化，以改善护理。