Objectives:Pain education has been shown to reduce pain and disability in people with persistent pain by increasing their understanding of ‘how pain works’. There are many resources that people can engage with to help them learn about pain. The primary aim of this study was to investigate the resources with which people with persistent pain engage, to learn about pain. Secondary aims included investigating the helpfulness of those resources, whether people assess the quality of the resources with which they engage and whether the resources sought differed according to whether or not they had a diagnosis for their pain.Design:Cross-sectional descriptive study.Setting:Online and paper-based surveys.Methods:People with persistent pain were recruited through advertising on social media and through local university health clinics. Participants completed a survey providing details about their pain condition, the resources with which they engaged to learn about pain, how useful they found these resources and whether they assessed the quality of the resources used.Results:Data were collected from 127 online surveys (80% female; age [± SD] was 41 [±16] years). Healthcare professionals were the most common resource with which participants engaged (85.0%), followed by the Internet (68.5%) and scientific articles (52.8%). Books and scientific articles had the highest helpfulness rating; healthcare professionals and pamphlets had the lowest. Most respondents (85.3%) reported assessing the quality of the resources they engaged with.Conclusion:Despite being the most common resource participants engaged with, healthcare professionals were awarded some of the lowest helpfulness ratings. Care needs to be taken to ensure that people with persistent pain are directed towards learning resources that can provide helpful, relevant and evidence-based information.

中文翻译：

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患有持续性疼痛的人使用哪些资源来帮助他们更好地了解自己的疼痛？横断面调查

目的：疼痛教育已被证明可以通过增加持续性疼痛患者对“疼痛如何发生”的理解来减少他们的疼痛和残疾。人们可以利用许多资源来帮助他们了解疼痛。这项研究的主要目的是调查患有持续性疼痛的人所使用的资源，以了解疼痛。次要目标包括调查这些资源的有用性、人们是否评估他们所使用的资源的质量以及所寻求的资源是否根据他们是否有疼痛诊断而有所不同。设计：横断面描述性研究。设置：在线和纸质调查。方法：通过社交媒体上的广告和当地大学健康诊所招募患有持续性疼痛的人。参与者完成了一项调查，详细介绍了他们的疼痛状况、他们用来了解疼痛的资源、他们发现这些资源的有用程度以及他们是否评估了所使用资源的质量。 结果：数据收集自 127 项在线调查（80 % 女性；年龄 [± SD] 为 41 [±16] 岁）。医疗保健专业人员是参与者最常用的资源（85.0%），其次是互联网（68.5%）和科学文章（52.8%）。书籍和科学文章的有用性评级最高；医疗保健专业人员和小册子的得分最低。大多数受访者 (85.3%) 报告评估了他们所使用的资源的质量。结论：尽管医疗保健专业人员是最常见的资源参与者，但他们却获得了一些最低的帮助评级。需要注意确保持续疼痛的人能够获得能够提供有用、相关和基于证据的信息的学习资源。