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An exploratory study of Saudi parents' perceptions and beliefs about institutional and home care for children with disabilities
Children and Youth Services Review ( IF 2.519 ) Pub Date : 2024-03-29 , DOI: 10.1016/j.childyouth.2024.107547
Abdullah Alrubaian , Norah Alkhateeb , Deborah Tamakloe

Quality care is critical to the quality of life and well-being of persons with disabilities. However, children with disabilities face unprecedented challenges which include access to assistive technology and rehabilitative devices, social exclusion, and negative attitudes in their various care settings. The present qualitative study seeks to understand parents' perceptions of home or institutional care for children with disabilities. The study utilized an exploratory qualitative approach paradigm with five focus groups in the Qassim region of Saudi Arabia. Framework data analysis identified opposing and supporting perspectives for home and institutional-based care. Beneficial aspects of home care relate to cultural upbringing and the opportunity to acquire social and daily living skills. Families believe there are benefits of institutional care because such care settings have specialists and resources to support persons with disabilities. They argue for these resources to be linked to disability cases in families to optimize the development of children with disabilities. The study concluded that a dedicated care team to support families to cater to the needs of their children with disabilities at home is preferred over institutional-based care.

中文翻译:

关于沙特父母对残疾儿童的机构和家庭护理的看法和信念的探索性研究

优质护理对于残疾人的生活质量和福祉至关重要。然而,残疾儿童面临着前所未有的挑战,包括获得辅助技术和康复设备、社会排斥以及各种护理环境中的消极态度。本定性研究旨在了解父母对残疾儿童的家庭或机构护理的看法。该研究采用了探索性定性方法范式,由沙特阿拉伯卡西姆地区的五个焦点小组组成。框架数据分析确定了对家庭和机构护理的反对和支持观点。家庭护理的好处与文化教养以及获得社交和日常生活技能的机会有关。家庭相信机构护理有好处,因为此类护理机构有专家和资源来支持残疾人。他们主张将这些资源与家庭残疾案例联系起来,以优化残疾儿童的发展。该研究得出的结论是,与基于机构的护理相比,更倾向于选择专门的护理团队来支持家庭满足残疾儿童在家中的需求。
更新日期:2024-03-29
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