The concept of parental burnout has been proposed to be helpful for describing and understanding the impact of parenting children with complex care needs (CCN). The objective of this scoping review was to investigate, among parents of children with CCN (i) how burnout is conceptualized, (ii) differences in burnout scores, (iii) the prevalence of burnout, and (iv) the associated factors related to burnout. A stakeholder consultation including parents of children with CCN, healthcare professionals, and researchers, was conducted to understand their perspectives on important insights and gaps from the literature. A total of 57 studies were eligible for inclusion. Conceptualization of parental burnout varied widely across studies, with few studies investigating the meaning of the concept for parents. Burnout scores were higher among parents of children with CCN and prevalence estimates varied between 20 and 77%, and exceeded burnout among parents of children without CCN. Few studies included associated factors in the context of parenting and caregiving. Stakeholders endorsed the importance of studies into the multifactorial determination of burnout in the context of parenting and caregiving children with CCN. The results highlight the extremes of stress and burden experienced by parents of children with CCN. An important gap remains understanding the complex interplay between personal and contextual factors pertaining to risk and resilience.

提出父母倦怠的概念有助于描述和理解养育具有复杂护理需求（CCN）的儿童的影响。本次范围审查的目的是在 CCN 儿童的父母中调查（i）如何概念化倦怠，（ii）倦怠评分的差异，（iii）倦怠的患病率，以及（iv）与倦怠相关的相关因素。我们进行了利益相关者咨询，包括 CCN 儿童的家长、医疗保健专业人员和研究人员，以了解他们对重要见解和文献差距的看法。共有 57 项研究符合纳入条件。不同研究对父母倦怠的概念差异很大，很少有研究调查这个概念对父母的意义。患有 CCN 的儿童的父母的倦怠得分较高，患病率估计在 20% 到 77% 之间，并且超过了没有 CCN 的儿童的父母的倦怠程度。很少有研究纳入养育和照顾方面的相关因素。利益相关者认可在养育和照顾患有 CCN 的儿童的背景下研究倦怠的多因素决定的重要性。结果突显了 CCN 儿童父母所承受的极端压力和负担。一个重要的差距仍然是理解与风险和复原力有关的个人因素和背景因素之间复杂的相互作用。