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Cultural adaptation of an intervention for caregivers of young autistic children: Community members' perspectives
Family Process ( IF 4.319 ) Pub Date : 2024-04-12 , DOI: 10.1111/famp.12999
Adriana Kaori Terol 1 , Hedda Meadan 1 , Laura R. Gómez 2 , Sandy Magaña 3
Affiliation  

Caregivers of autistic children in low‐to‐middle‐income countries experience many barriers to access resources to support their child's development. Caregiver training is considered an evidence‐based practice and may be a cost‐effective way to support caregivers of autistic children in such settings. This study focuses on the cultural adaptation of Parents Taking Action (PTA; Magaña et al., Family Process, 56, 57–74, 2017) to support caregivers of autistic children in Paraguay. We conducted focus groups and individual interviews with 28 caregivers, autistic individuals, and professionals in Paraguay to understand caregivers' needs and to explore needed cultural adaptations of PTA to achieve contextual fit. Participants identified caregivers' need for accurate and reliable information, strategies to support children's growth, and emotional support and strategies to manage stress. Additionally, participants provided recommendations for adapting PTA considering the dimensions within the Cultural Adaptation Checklist (Lee et al., International Journal of Developmental Disabilities, 2023). This study is the first step in the iterative process of culturally adapting an intervention and the process described in this study may be appropriate for culturally adapting other interventions.

中文翻译:

自闭症儿童照顾者干预措施的文化适应:社区成员的观点

中低收入国家自闭症儿童的照顾者在获取支持儿童发展的资源方面遇到许多障碍。护理人员培训被认为是一种基于证据的实践,可能是支持此类环境中自闭症儿童护理人员的一种经济高效的方式。本研究重点关注“父母采取行动”的文化适应(PTA;Magaña 等人,家庭流程,56,57-74,2017)支持巴拉圭自闭症儿童的照顾者。我们对巴拉圭的 28 名看护者、自闭症患者和专业人士进行了焦点小组和个人访谈,以了解看护者的需求,并探索 PTA 所需的文化适应,以实现情境契合。参与者确定了护理人员对准确可靠的信息、支持儿童成长的策略以及情感支持和管理压力的策略的需求。此外,考虑到文化适应清单中的各个维度,参与者还提供了调整 PTA 的建议(Lee 等人,国际发育障碍杂志,2023)。这项研究是文化适应干预措施迭代过程的第一步,本研究中描述的过程可能适合文化适应其他干预措施。
更新日期:2024-04-12
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