Objective

To develop a consensus guideline to meet nutritional challenges faced by infants with congenital diaphragmatic hernia (CDH).

Study design

The CDH Focus Group utilized a modified Delphi method to develop these clinical consensus guidelines (CCG). Topic leaders drafted recommendations after literature review and group discussion. Each recommendation was sent to focus group members via a REDCap survey tool, and members scored on a Likert scale of 0–100. A score of > 85 with no more than 25% outliers was designated a priori as demonstrating consensus among the group.

Results

In the first survey 24/25 recommendations received a median score > 90 and after discussion and second round of surveys all 25 recommendations received a median score of 100.

Conclusions

We present a consensus evidence-based framework for managing parenteral and enteral nutrition, somatic growth, gastroesophageal reflux disease, chylothorax, and long-term follow-up of infants with CDH.

中文翻译：

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先天性膈疝婴儿从出生到出院营养的临床共识指南

客观的

制定共识指南，应对先天性膈疝 (CDH) 婴儿面临的营养挑战。

学习规划

CDH 焦点小组利用改进的德尔菲法来制定这些临床共识指南 (CCG)。课题负责人经过文献查阅和小组讨论后起草了建议。每项建议均通过 REDCap 调查工具发送给焦点小组成员，成员按照李克特量表 0-100 进行评分。分数 > 85 且异常值不超过 25% 被指定为先验，表明小组之间达成​​共识。

结果

在第一次调查中，24/25 条建议的中位数得分 > 90，经过讨论和第二轮调查后，所有 25 条建议的中位数得分为 100。

结论

我们提出了一个基于证据的共识框架，用于管理肠外和肠内营养、躯体生长、胃食管反流病、乳糜胸以及 CDH 婴儿的长期随访。