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Siblings of individuals with intellectual and developmental disability: Relations between involvement, personal resources, loneliness, and their adjustment J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2024-01-23 Ayelet Siman-Tov, Adi Sharabi
The study examined relations between a number of variables regarding typically-developing adult siblings of individuals with intellectual and developmental disability: involvement in the lives of t...
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Stigmatising young people with intellectual disability: Perceptions of the main stakeholders at a Spanish university J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2024-01-24 Joanne Mampaso Desbrow, Álvaro Moraleda Ruano, Diego Galán-Casado, Diana Ruiz-Vicente
One of the main challenges facing individuals with an intellectual disability is the stigma associated with the various obstacles that hinder their process of full integration. Despite the efforts ...
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Whose voice is it anyway? Adults with intellectual disabilities and future planning: A scoping review of qualitative studies J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2024-01-23 I. Belperio, R. Walker, C. Bigby, I. Wiesel, F. Rillotta, C. Hutchinson
Future planning is a way of supporting people with intellectual disabilities and their families to think about their support needs as both groups age. Adults with intellectual disabilities, family ...
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Exploring sexual health in people with mild intellectual disabilities: A concept mapping study on the perspectives of relatives and support staff J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2024-01-24 Wouter de Wit, D. Roeg, N. Frielink, P. J. C. M. Embregts
Sexual health includes physical, emotional, mental, and social wellbeing related to sexuality. Given people with mild intellectual disabilities’ reliance on relatives and support staff, it is impor...
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Siblings of adults with intellectual disabilities in Chinese societies: A scoping review J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-12-22 Kangwei Xun, Christine Bigby, Tal Araten-Bergman
Adult siblings without disabilities play important roles in relation to their brothers and sisters with intellectual disabilities. This study reviewed knowledge about adult sibling relationships in...
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Communities of practice for implementing methods to reduce involuntary care in intellectual disability care: Insights from tacit and experiential knowledge exchange J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-12-10 Esther H. Bisschops, J. Clasien de Schipper, Zina Salhi, Petri J.C.M. Embregts, Carlo Schuengel
Intellectual disability organisations in the Netherlands are seeking to improve clients’ quality of care by implementing methods that reduce involuntary care. This study described insights gained f...
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2022: JIDD Awards Announcement J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-11-19
Published in Journal of Intellectual & Developmental Disability (Vol. 48, No. 4, 2023)
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An Australian online training and support program for caregivers of children and youth with Fetal Alcohol Spectrum Disorder: Families linking with families J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-11-21 Anita Gibbs, Julie Flanagan, Louise Gray
Australia has limited supports to help families where Fetal Alcohol Spectrum Disorder (FASD) impacts children and young people. National Organisation for Fetal Alcohol Spectrum Disorder Australia (...
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2023 Reviewers J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-11-19
Published in Journal of Intellectual & Developmental Disability (Vol. 48, No. 4, 2023)
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On-the-job training supports for people with intellectual disability employed in aged care J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-10-26 June Alexander, Sandra Gendera, Sally Robinson, Karen R. Fisher, Kellie Howe
Traineeships have been proven to be beneficial vocational pathways for people with intellectual disability however to date the on-the-job training provision associated with traineeships has not bee...
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Preconditions influencing the development of post-secondary training programs in universities for individuals with intellectual disabilities J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-10-26 Denise De Souza, Zelinna Pablo, Michael Shevlin, Maria Theresa von Fürstenberg, Jennifer Banks, Debashis Sarker, Alejandra Rios Urzua, Donatella Camedda, Des Aston
Research on post-secondary training for individuals with intellectual disabilities has generally focused on programs, with little consideration of the structures and mechanisms that give rise to th...
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The relationship of productivity-based wages to human rights and occupational justice – an exploratory study J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-10-01 R. M. Lysaght, N. Bobbette
Productivity-based wage systems are intended to enhance the labour market participation of people with disabilities. Limited scholarship exists regarding the impact of such policies in practice. Th...
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Reasonable adjustments to the application of the comprehensive care standard within an Australian mainstream internal medicine outpatient clinic attended by adults with Down syndrome J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-09-13 Robyn A. Wallace
ABSTRACT Background The Australian Commission on Safety and Quality in Health Care recommends the development of reasonable adjustments to Comprehensive Care Standard to better suit the needs of people with intellectual disability. Method An audit of adults with Down syndrome attending a mainstream internal medicine outpatient clinic was undertaken to describe their biopsychosocial profile, identify
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Educating the educated: The impact of educational interventions on knowledge, attitudes and confidence of healthcare professionals in caring for patients with intellectual disability: A systematic review J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-09-03 Gracie Hay, Nathan J. Wilson, Natalie Ong, Patrick Benson, Gisselle Gallego
ABSTRACT Background The attitudes, perceptions and inherent biases of healthcare professionals (HCPs) have the potential to influence and inform health outcomes of people with intellectual disability. This review aimed to identify what educational interventions have been conducted to improve the attitude, knowledge, and confidence of HCPs in caring for people with intellectual disability. Method A
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“A life well led”: What does this mean for a person with severe intellectual disability? J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-09-03 Stuart Wark, Martin Kingstone
Published in Journal of Intellectual & Developmental Disability (Vol. 48, No. 4, 2023)
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Young people with intellectual disability speak out about life after school: “I want to do more in life than just…be a disability person” J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-08-22 L. L. Mogensen, G. Drake, J. McDonald, N. Sharp
ABSTRACT Background The transition from school to adult life is challenging for young people with intellectual disability. The study aimed to explore how young people with intellectual disability themselves experience the transition from school to adult life. Methods A co-designed, qualitative study. Thematic data analysis of qualitative survey responses, semi-structured interviews, and focus groups
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A comparative analysis of the prevalence and predictors of chronic pain in older adults with and without intellectual disability in Australia J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-08-07 Stuart Wark, Rafat Hussain, Matthew P. Janicki, Marie Knox, Trevor Parmenter
ABSTRACT Background There is little research comparatively assessing prevalence of pain between older people either with or without intellectual disability. This paper explores health and social factors associated with chronic pain in these two groups. Method A cross-sectional survey was undertaken in New South Wales and Queensland, Australia. Inclusion criteria were adults either with or without intellectual
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A qualitative study investigating the experiences of young adults caring for a sibling with disability within immigrant families in the UK: “Challenges are just the constant” J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-08-02 Simrit Sangha, Joanna K. Anderson, Anne-Marie Burn
Despite a growing body of literature investigating the impact of disabilities on family relationships, the experiences of ethnic minorities remain underexplored.Semi-structured online interviews we...
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Health-related quality of life of children and adolescents with one vs. multiple disabilities – Are there differences from the parents’ perspective? J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-07-19 Željka Nikolašević, Karolina Čučković, Ksenija Gebauer-Bukurov, Vojislava Bugarski Ignjatović
ABSTRACT Background Multiple disabilities represent separate entities that cannot be reduced to the sum of disabilities or the main disability. This study compared the health-related quality of life (HRQoL) of children and adolescents with multiple disabilities and those with one developmental disability. We further assessed how comorbidities and guardianship type affected HRQoL. Method On a sample
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How should we support families of people with intellectual disability to promote their self-determination? A Delphi study on critical components for intervention J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-07-20 Cristina Mumbardó-Adam, Araceli Arellano, Eva Vicente, Ana Berástegui
Self-determination related skills are central for achieving a life of quality for people with intellectual disability and develop as the person interacts with his/her contexts, such as home. As suc...
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A comparison of the sensory needs of autistic adults with and without intellectual disabilities: A short report J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-07-20 Jill Bradshaw, Jane Pringle, Damian Milton, Julie Beadle-Brown
Autistic people commonly report differing sensory experiences. This research aimed to find out about sensory issues and the sensory environments of autistic adults who did and did not have intellec...
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Sensory and balance impairments in Special Olympics athletes: An epidemiological study J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-06-18 Erin N. Jarvis, Danielle McAuliffe, Mercedes Dayan, Jane McDevitt
Having an intellectual disability increases the likelihood for exhibiting impairments in vision, hearing, and balance. The intersection of these issues has yet to be described in a large cohort.By ...
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What is ethically required to adapt to intellectual disability in cancer care? A case study of testicular cancer management J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-06-15 C. Delany, M. Diocera, J. Lewin
People with intellectual disability who require cancer services face several barriers and inequities, including delayed or unrecognised cancer diagnosis and inadequate attention paid to their speci...
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A systematic review on attachment and down syndrome J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-05-28 S. Vanwalleghem, R. Miljkovitch
To document whether the sociocognitive peculiarities of people with Down Syndrome impact the construction of attachment at different ages, a systematic review of the literature was carried out.This...
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Socio-demographic and clinical profiles of adults with an intellectual disability admitted to acute general psychiatric wards in a Singapore hospital J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-04-25 Sreedharan Geetha Sajith, Ker-Chiah Wei, Giles Ming Yee Tan
ABSTRACT Background People with an intellectual disability have a higher risk of developing mental disorders compared to the general population. Available evidence suggests those with an intellectual disability receiving inpatient treatment in general psychiatric wards may have certain unique characteristics. Method Data gathered from a retrospective review of records of adults with intellectual disability
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The impact of inclusion: Improving medical student confidence in caring for adults with intellectual disabilities through an interactive, narrative-based session J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-04-25 Lauren Clarke, Holly K. Tabor
ABSTRACT Background There is often very little training during medical school focused on how to provide care to individuals with intellectual disabilities. This curriculum gap results in students reporting low levels of confidence in their ability to care for this population. Methods Medical students attended an interactive, narrative-based session on caring for individuals with intellectual disabilities
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Parental role in intimate relationships: Comparing adults with and without intellectual disabilities J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-04-23 Rebecca R. Kammes, Sarah N. Douglas, Rhonda S. Black
Adults with intellectual disabilities experience higher rates of exploitative intimate relationships. Parents of these adults play important roles in their lives. This study examined the role of pa...
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Families’ perspectives on the process of community transitions of individuals with severe intellectual and developmental disabilities J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-04-19 Maria Baranowski, Margherita Cameranesi, Javier Mignone, Lindsay McCombe, Kayla Kostal, Jenna Heschuk, Shahin Shooshtari
ABSTRACT Background Deinstitutionalisation refers to the transition of individuals with intellectual and developmental disabilities from large institutions to smaller homes in the community. The purpose of this study was to explore how family members of persons with intellectual and developmental disabilities perceived their loved ones’ community transition process. Method Eight family members of persons
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Adaptive profiles within a broad clinical sample from a transdiagnostic point of view J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-04-13 Bea Kreemers, Jarymke Maljaars, Kris Evers, Bea Maes, Ilse Noens
Current literature mainly focuses on adaptive profiles from a categorical perspective but yields inconclusive results. The present study puts a transdiagnostic approach next to a “classical” catego...
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Are obesity and physical fitness associated with cardiovascular disease risk in adolescents with Down syndrome? The longitudinal UP&DOWN study J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-03-30 Rocio Izquierdo-Gómez, Irene Esteban-Cornejo, Verónica Cabanas-Sánchez, Ascensión Marcos, Sonia Gómez-Martínez, José Castro-Piñero, Óscar L. Veiga, on behalf of the UP&DOWN Study Group
ABSTRACT Introduction The aims of this study were to examine cross-sectional, and longitudinal association of different measures of obesity and physical fitness with cardiovascular disease (CVD) risk factors in adolescents with Down syndrome. Methods Longitudinal analysis included 90 adolescents with Down syndrome. Obesity and physical fitness were measured following the ALPHA battery. Blood pressure
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The construct validity and reliability of the Motor Development List for the assessment of motor skills in children with profound intellectual and multiple disabilities: The next step? J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-03-28 Marleen D. Wessels, Arjen A.G. Van Assen, Wendy J. Post, Annette A. J. Van der Putten
Background: There are no psychometrically validated instruments available to measure motor skills of children with profound intellectual and multiple disabilities (PIMD). In this study, the constru...
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Cultural beliefs versus professional health training: implications for healthcare delivery to persons living with intellectual disabilities in Ghana J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-03-19 Douglas Odongo Attoh, Eric Agyemang, Ronald Kondor, John Boulard Forkuor, Kwadwo Ofori-Dua
ABSTRACT Background In most African countries, disability is explained by cultural beliefs. This has implications for healthcare delivery for persons with intellectual disabilities. Methods With the aid of a qualitative approach, we explore the interplay between cultural beliefs and the training of health professionals and their implications for the healthcare delivery to persons living with intellectual
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Adolescents with intellectual disability in residential child care: Double vulnerability J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-03-20 A. Águila-Otero, S. Lázaro-Visa, J. F. Del Valle, A. Bravo
Adolescents with intellectual disability in residential child care are a highly vulnerable population. The main goal of this study is to explore the characteristics of young people with intellectua...
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Adversity versus fate, genetics, and the environment: Causal beliefs and attitudes toward intellectual disability J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-03-16 Alexandra Maftei, Alois Gherguț
The present study investigated the role of demographic and personal factors concerning the attitudes toward intellectual disability. Our sample consisted of 482 Romanians aged 18 to 74. We measured...
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Short Physical Performance Battery reliability and validity in adults with mild to moderate intellectual disability J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-02-23 Iraia Bidaurrazaga-Letona, José Carlos Diz, Jon Torres-Unda, Izaro Esain, Xabier Monasterio, Biotz Zulueta, Carlos Ayán
ABSTRACT Background People with intellectual disability have poor balance skills and greater fall risk. The Short Physical Performance Battery (SPPB) provides comprehensive information on functional status and can predict fall risk. However, the reliability and validity of the SPPB have not been evaluated in people with intellectual disability. Methods Seventy-eight adults with intellectual disability
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The impact of sexual abuse on body experience in adults with mild intellectual disability or borderline intellectual functioning J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-02-23 Manon J. Smit, Claudia Emck, Mia Scheffers, Jooske T. van Busschbach, Peter J. Beek
ABSTRACT Background Research is lacking on body-related consequences of sexual abuse in adults with mild intellectual disability or borderline intellectual functioning (MID-BIF), although the prevalence of abuse is high and body- and movement-oriented diagnostics and therapeutics seem warranted for this group. Method Body experience in adults with MID-BIF who were sexually abused (SA) and were not
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Parents’ perceptions of risk and protective factors for problematic sexual behaviour in young Korean individuals with developmental disabilities J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-01-24 Eunyoung Son, Donghyun Ahn, Johanna Inhyang Kim, Sojung Kim
ABSTRACT Background Limited data exist on problematic sexual behaviour (PSB) in youth with developmental disabilities in South Korea. Method Sixty-one parents of children with intellectual disabilities or autism spectrum disorder (aged 13–30) reported children’s PSB and emotional, behavioural, cognitive, and interpersonal factors. The frequency of PSB in children with developmental disabilities was
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The Back to Back Theatre film internship program for people with intellectual disability: A summative evaluation J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2023-01-24 Angela Dew, Kevin Murfitt, Monica Wellington, Cadeyrn J. Gaskin
ABSTRACT Background Internships may be a successful pathway for increasing employment rates among people with intellectual disability. This paper presents a summative evaluation of a brief film internship program for people with intellectual disability. Method At the commencement and conclusion of the internship, semi-structured interviews were conducted with eight interns and 10 mentors. The interview
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Giving guidance in the online lives of young people with intellectual disabilities: Challenges and guiding approaches in the daily practice of Dutch care staff J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-12-11 Rogier de Groot, Hendrien L. Kaal, Wouter Ph. Stol
ABSTRACT Background This study reports the findings from a Dutch study, exploring care workers’ challenges and approaches in guiding young people with intellectual disabilities in their online lives. Method Using an inductive research design 33 semi-structured interviews were conducted with care workers. Results Care workers report challenges that revolve around three themes: (1) the perceived intangibility
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Operationalisation of self-determination of persons with profound intellectual and multiple disabilities: A Delphi study J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-12-07 S. Nijs, M. Zijlmans, C. Schuengel, P. J. C. M. Embregts
ABSTRACT Background The high support needs of persons with profound intellectual and multiple disabilities hamper their possibilities for self-determination. To support their self-determination understanding of what this means for this group is necessary. Method A three-round Delphi procedure with international experts was undertaken to operationalise self-determination for persons with profound intellectual
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2022 Reviewers J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-12-05
Published in Journal of Intellectual & Developmental Disability (Vol. 47, No. 4, 2022)
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2021 JIDD Awards Announcement J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-12-05
Published in Journal of Intellectual & Developmental Disability (Vol. 47, No. 4, 2022)
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Sexual behaviours of individuals with developmental disabilities in South Korea: A qualitative study exploring the views and experiences of professionals J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-11-16 Euwon Joh, Kyoung Min Shin, Kawon Kim, Johanna Inhyang Kim, Sojung Kim
ABSTRACT Background Despite the considerable number of young adults with developmental disabilities experiencing sexual desire and exhibiting sexual behaviours as part of their natural biological growth and development, there is a lack of research on effective intervention. This study aimed to explore the views and experiences of professionals on the sexual behaviours of individuals with developmental
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Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-11-08 M. C. den Boer, M. A. C. Voermans, P. J. C. M. Embregts
ABSTRACT Background Mothers of young adults with profound intellectual and multiple disabilities that live at home are less likely to be on the radar of formal services. We explored the experience of these mothers over the course of the COVID-19 pandemic. Methods A qualitative study using three case studies. Transcripts were analysed using Interpretative Phenomenological Analysis. Results Two overarching
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Psychological adjustment of siblings of children with Prader-Willi syndrome J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-11-02 Laura Bennett Murphy, Jane Thornton, Emma Thornton
ABSTRACT Background Siblings of children with Prader-Willi syndrome (PWS) may be at elevated risk for poor psychological adjustment (Mazaheri, M. M., Rae-Seebach, R. D., Preston, H. E., Schmidt, M., Kountz-Edwards, S., Field, N., Cassidy, S., Packman, Wet al. (2013). The impact of Prader-Willi syndrome on the family’s quality of life and caregiving, and the unaffected siblings’ psychosocial adjustment
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Use of health and dental care services in adults with intellectual disability in relation to age and intellectual disability levels J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-10-18 Monica Isabel Olsen, Erik Søndenaa, Ellen Melbye Langballe, Marianne Berg Halvorsen, Per Wilhelmsen, Erik Bautz-Holter, Audny Anke
ABSTRACT Background This study investigates the use of health and dental care services in adults with intellectual disability in the last 12 months according to Norwegian recommendations and in relation to age and intellectual disability levels. Method A cross-sectional community-based survey including 214 participants (56% men). POMONA health indicators were used for data collection. Results Health
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A questionnaire to measure direct support professionals’ attitude towards healthy nutrition of people with intellectual disabilities J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-10-16 A. Overwijk, W. P. Krijnen, T. I. M. Hilgenkamp, C. P. van der Schans, A. A. J. van der Putten, A. Waninge
ABSTRACT Background Direct support professionals’ (DSPs') attitudes toward nutrition are important for supporting a healthy lifestyle of persons with intellectual disabilities. However, there are no instruments to measure it. The aim of this study was to compose a questionnaire and determine its internal validity. Method The previously validated Health Enhancing Physical Activity questionnaire was
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Characteristics of children attending an autism specific early learning and care setting prior to and following introduction of the National Disability Insurance Scheme J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-10-10 Megan Clark, Cheryl Dissanayake
ABSTRACT Background The rollout of the National Disability Insurance Scheme (NDIS) has transformed the Australian funding landscape for individuals with disability and their families. This study examined whether the profiles of autistic children and their families accessing an early intervention (EI) setting have changed following its introduction. Methods The cognition and behavioural profiles of
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Characteristics of children attending an autism specific early learning and care setting prior to and following introduction of the National Disability Insurance Scheme J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-10-10 Megan Clark, Cheryl Dissanayake
The rollout of the National Disability Insurance Scheme (NDIS) has transformed the Australian funding landscape for individuals with disability and their families. This study examined whether the p...
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The juncture and disjuncture of service delivery systems in post-parental care planning for rural people with intellectual disabilities J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-10-03 Stuart Wark, Lia Bryant, Tyson Morales-Boyce, Kate Deuter
ABSTRACT Background Australian research indicates that post-parental care transitions are rarely planned and primarily occur following a crisis for a primary carer. This paper examines disability staff perceptions of transitions for people with intellectual disability and their ageing carers in rural South Australia. Method A focus group interview model was used, with a semi-structured interview guide
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Loneliness and how to counter it: People with intellectual disability share their experiences and ideas J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-09-28 Sally Robinson, Jan Idle
ABSTRACT Background People with intellectual disability are at higher risk of experiencing social isolation in their everyday lives, because of exclusionary practices, discriminatory social policies and structural exclusion. However, less is known about what people with intellectual disability themselves think about loneliness in their lives and what might alleviate it. Method In this inclusive research
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Evaluating the impact of a virtual educational intervention on medical students’ knowledge and attitudes towards patients with intellectual and developmental disabilities J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-09-23 I. Berger, S. Weissman, H. Raheel, A. Bagga, R. Wright, F. Leung, A. Loh, C. Lee-Jones, B. Isaacs, J. Vogt
ABSTRACT Background Research suggests physicians may harbour paternalistic attitudes towards people with intellectual and developmental disabilities and lack the knowledge and skills to work with them. This study examined the impact of a brief intellectual and developmental disability curriculum intervention on these outcomes. Methods First-year medical students completed a pre–post questionnaire on
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The need to include intellectual/developmental disability in medical school curriculum: The perspective of a student advocate J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-09-15 Lauren Clarke
ABSTRACT Medical students receive very little instruction related to caring for people with intellectual/developmental disabilities. As a result, medical students and physicians alike report low levels of confidence in their ability to provide care to this population. In this piece, I provide a medical student’s perspective on how to implement changes in the medical school curriculum such that our
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Parents with intellectual disability and mental health conditions: Early intervention providers’ perceptions J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-09-14 Nicole Megan Edwards, Rebecca Lieberman-Betz, Sarah Wiegand
ABSTRACT Background It is highly recommended that professionals promote caregivers' capacity-building to use intervention strategies to support children with developmental delays or disabilities in natural learning environments, particularly in the earliest years of life. There is a gap, however, in understanding the extent to which these professionals may feel supported in tailoring outreach to support
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Experiences in outdoor recreation among individuals with developmental disabilities: Benefits, constraints, and facilitators J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-09-08 Merry Armstrong, I. Sharaievska, B. M. Crowe, R. J. Gagnon
ABSTRACT Background Individuals with developmental disabilities have specific physical and psychosocial needs that can require extra support to participate fully in and enjoy many benefits of recreation activities. Unfortunately, little is known about individuals with developmental disabilities' experiences in outdoor recreation. The purpose of this study was to explore adults with developmental disabilities’
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Patterns of presentation to a Children’s Hospital Emergency Department of patients with autism and/or intellectual disability with behaviours of concern J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-09-08 Daryl Efron, Emily Cull, James Fowler, Karen Dunn, Chidambaram Prakash
ABSTRACT Background The aim of this study was to investigate the demographic, clinical characteristics, and service systems of patients with autism spectrum disorder (ASD) and/or intellectual disability presenting to a large paediatric hospital emergency department (ED) with behaviours of concern (BOC) over a two-year period. Method Retrospective audit of ED presentations with BOC in patients with
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Evaluating a visual communications tool to explore risk and safety with nurses and patients within an intellectual disability forensic service: A pilot study J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-08-24 Sam Quinn, Sarah J. Rhynas, Susan Gowland, Lois Cameron, Nicola Braid, Aisha Holloway, Siobhan O’Connor
ABSTRACT Background Issues of risk and safety can be challenging to discuss with forensic patients with an intellectual disability. Talking Mats is a visual communication tool that facilitates therapeutic conversations. Method A pilot study, adopting an ethnographic approach, was used to evaluate Talking Mats. Interviews and video observations were conducted with nurses and forensic patients with an
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A survey on the use of remote consultation for people with intellectual disability: The experience of community intellectual disability teams J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-08-24 Laura Nicholson, Sudhakar Sharma, Sarah Andrews, Alistair Farquharson, H. Welsh
ABSTRACT Background Since COVID-19, remote consultation (by telephone and video) has become widespread. This study investigated the experience of using remote consultation in Specialist Intellectual Disability Community services. Method A total of 126 health staff working across eight Specialist Intellectual Disability Community teams in the NHS Health Board of Greater Glasgow and Clyde were asked
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The adaptation experience of families with children with developmental disabilities in Mainland China J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-08-24 Hui Su, Hailing Gong, Gwynnyth Llewellyn, Jinxia Liu, Yali Yi, Yaqian Gao
ABSTRACT Background Families of children with developmental disabilities face extraordinary changes in their life circumstances and needs that require adaptations to create sustainable and meaningful daily routines. The present study explored the adaptation of Chinese families of children with developmental disabilities from an ecocultural theoretical perspective. Method A total of 34 families of children
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Understanding parental physical activity behaviours in parents of children with disabilities: An expanded theory of planned behaviour approach J. Intellect. Dev. Disabil. (IF 1.951) Pub Date : 2022-08-23 Byungmo Ku, Justin A. Haegele
ABSTRACT Background The purpose of the current study was to examine association between physical activity (PA) of parents of children with developmental disabilities and theory of planned behaviour-related variables. Methods A total of 95 participants completed questionnaires that measured the following variables: PA behaviours, action planning, intention, affective attitude, instrumental attitude