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‘You Are Not Alone, We’ve Got You’: Power Plays, Devotion, and Punishment on Healthy Eating and Pro-Eating Disorder Websites Qualitative Health Research (IF 4.233) Pub Date : 2024-03-26 Panagiota Tragantzopoulou, Alison Fixsen, Damien Ridge, Anna Cheshire
Healthy eating (HE) and pro-eating disorder (pro-ED) websites are popular sources of dietary and weight loss information, social support, and lifestyle inspiration. However, the discursive styles and language used by authors/moderators and users of these two site genres have not been widely studied or compared. Forty-three HE websites and twenty-four pro-ED websites were analysed using Fairclough’s
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Mixed Methods for Research on Support Networks of People Experiencing Chronic Illness and Social Marginalization Qualitative Health Research (IF 4.233) Pub Date : 2024-03-21 Tessa M. Nápoles, Emily A. Ekl, Jeff Nicklas, Laura Gómez-Pathak, Irene H. Yen, Dani Carrillo, Kathleen de Leon, Nancy J. Burke, Brea L. Perry, Janet K. Shim
Substantial research has focused on how social networks help individuals navigate the illness experience. Sociologists have begun to theorize beyond the binary of strong and weak social network ties (e.g., compartmental, elastic, and disposable ties), citing the social, economic, and health conditions that shape their formation. However, limited research has employed mixed social network methods, which
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The Use of Vignettes to Improve the Validity of Qualitative Interviews for Realist Evaluation Qualitative Health Research (IF 4.233) Pub Date : 2024-03-19 Élisabeth Martin, Dave Bergeron, Isabelle Gaboury
Although realist evaluation (RE) requires multiple data collection methods, qualitative interviews are considered most valuable and are most frequently used. The guiding principles of RE may limit the emergence of new Context–Mechanism–Outcome (CMO) configurations by evoking particular underlying mechanisms. This paper proposes a new method for conducting semi-structured interviews in the RE context
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“Switching Hats”: Insights From Experienced Clinical Interviewers Turned Novice Research Interviewers Qualitative Health Research (IF 4.233) Pub Date : 2024-03-18 Brightlin N. Dhas, Jackie Fox, Benshamir Bright, Dina B. El Haj, Abraham P. James, Hussain A. H. J. Bu Hazaa, Sultan S. H. Al Abdulla
Health professionals/clinicians interview people regularly as part of their role. However, a qualitative research interview differs considerably to a clinical interview. If clinicians approach qualitative research interviewing based on their expertise in clinical interviewing, it could cause insufficiencies in qualitative data generation. In this reflection article, we, a team of four experienced clinical
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From Promise to Practice: How Health Researchers Understand and Promote Transdisciplinary Collaboration Qualitative Health Research (IF 4.233) Pub Date : 2024-03-15 Michael T. Lawless, Matthew Tieu, Mandy M. Archibald, Maria Alejandra Pinero De Plaza, Alison L. Kitson
There is an increasing emphasis on transdisciplinary research to address the complex challenges faced by health systems. However, research has not adequately explored how members of transdisciplinary research teams perceive, understand, and promote transdisciplinary collaboration. As such, there is a need to investigate collaborative behaviors, knowledge, and the impacts of transdisciplinary research
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A Culturally Humble Approach to Designing a Sports-Based Youth Development Program With African-Australian Community Qualitative Health Research (IF 4.233) Pub Date : 2024-03-14 Rachel Goff, Patrick O’Keeffe, Abraham Kuol, Rob Cunningham, Ronnie Egan, Bawa Kuyini, Robyn Martin
This article draws on the concept of cultural humility, to describe and analyze a decolonizing approach to co-designing a primary prevention basketball program for young African-Australian people in Melbourne, Australia. We explore the potential for genuine collaboration and power-sharing with a culturally diverse community through collaboratively developing the co-design process and resultant program
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Experience of Transitional Care Among Thai-Isan Older Stroke Survivors and Their Family Caregivers Qualitative Health Research (IF 4.233) Pub Date : 2024-03-14 Supavadee Thiengtham, Lenny Chiang-Hanisko, Deborah D'Avolio, Wanapa Sritanyarat
The transitional care model for people who have suffered brain injuries is a relatively recent addition to the Thai healthcare system. The aim of this study was to explore experience of Thai Isan older stroke survivors and their family caregivers across different points of transition from hospital to home. Fifteen dyads of older stroke survivors and their family caregivers were recruited following
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Maddening Post-Qualitative Inquiry: An Exercise in Collective (Mad) Theorising Qualitative Health Research (IF 4.233) Pub Date : 2024-03-13 Aimee Sinclair, Lyn Mahboub
Both post-qualitative inquiry and Mad methodologies sit on the fringes of qualitative health research, although their potential for creating new knowledges and practices is increasingly recognised. In this article, we explore the possibilities created by bringing these approaches together within research led by, or centring, mental health service users and survivors. We outline and reflect on a workshop
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Mpox Illness Narratives: Stigmatising Care and Recovery During and After an Emergency Outbreak Qualitative Health Research (IF 4.233) Pub Date : 2024-03-11 Anthony K. J. Smith, Daniel Storer, Kari Lancaster, Bridget Haire, Christy E. Newman, Sara Paparini, James MacGibbon, Vincent J. Cornelisse, Timothy R. Broady, Timmy Lockwood, Anna McNulty, Valerie Delpech, Martin Holt
In May 2022, a global outbreak of mpox (formerly monkeypox virus) affected thousands of mainly gay and bisexual men. Mpox is usually a time-limited illness that can involve fever, pain, and skin lesions, but may require hospitalisation. There is scant research into the firsthand experiences of people affected by mpox, including experiences of symptoms, healthcare, and recovery. This study considers
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Rethinking Barriers and Enablers in Qualitative Health Research: Limitations, Alternatives, and Enhancements Qualitative Health Research (IF 4.233) Pub Date : 2024-03-09 Abby Haynes, Victoria Loblay
Explorations of barriers and enablers (or barriers and facilitators) to a desired health practice, implementation process, or intervention outcome have become so prevalent that they seem to be a default in much health services and public health research. In this article, we argue that decisions to frame research questions or analyses using barriers and enablers (B&Es) should not be default. Contrary
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A Qualitative Analysis of Cancer Patients’ Perceptions of an Interprofessional Counseling Service on Complementary and Integrative Healthcare Qualitative Health Research (IF 4.233) Pub Date : 2024-03-05 Helena Dürsch, Ursula Boltenhagen, Cornelia Mahler, Stefanie Joos, Joachim Szecsenyi, Nadja Klafke
Medical guidelines recommend actively addressing patients’ information needs regarding complementary and integrative healthcare (CIH). Within the CCC-Integrativ study, an interprofessional counseling program on CIH was developed and implemented at four comprehensive cancer centers (CCCs) in Germany. As part of the process evaluation, this study examines cancer patients’ experiences with interprofessional
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Understanding the Experiences of COVID-19 Public Health Measures and Well-Being: A Qualitative Study Among Older Adults in Quebec, Canada Qualitative Health Research (IF 4.233) Pub Date : 2024-03-05 Julie Karmann, Ingrid Handlovsky, Gregory Moullec, Katherine L. Frohlich, Réjean Hébert, Olivier Ferlatte
This interpretative descriptive study explores how public health measures implemented during the first wave of the COVID-19 pandemic in Quebec, Canada, affected the well-being of older adults. Twenty-six participants aged 60–81 took photographs to depict how COVID-19 public health measures affected their well-being and were invited to discuss their photographs in virtual focus groups. Data were analyzed
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‘Moving on’ for Adults With a Learning Disability and Their Families: A Constructivist Grounded Theory Study Qualitative Health Research (IF 4.233) Pub Date : 2024-03-04 Bethany Taylor, Jill Thompson, Tony Ryan
Ending familial co-residence, termed ‘moving on’ by participants, is an increasingly relevant life transition for people with a learning disability due to increasing life expectancy and policy developments. Nevertheless, there is an absence of research exploring this transition experience in a United Kingdom (UK) context. This constructivist grounded theory study therefore aimed to explore, conceptualise
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Theorising Support for Interdisciplinary Early-Career Researchers Using Communicative Genre and ‘Rules of the Game’ Qualitative Health Research (IF 4.233) Pub Date : 2024-03-01 Ninna Meier, Trish Greenhalgh, Gemma Hughes, Chrysanthi Papoutsi
Qualitative social scientists working in medical faculties have to meet multiple expectations. On the one hand, they are expected to comply with the philosophical and theoretical expectations of the social sciences. On the other hand, they may also be expected to produce publications which align with biomedical definitions and framings of quality. As interdisciplinary scholars, they must handle (at
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Black Queer Being/Knowing/Feeling: Storytelling of Barriers to Reproductive Healthcare Qualitative Health Research (IF 4.233) Pub Date : 2024-03-01 Robyn B. Adams, Morgan E. Ellithorpe
Anti-Blackness and heteronormativity are the driving forces that determine access to reproductive healthcare and services in the United States, and the rate of Black birthing-related deaths continue to skyrocket. Still, there is a dearth of literature that includes the reproductive experiences of Black birthing people and their interactions with the healthcare system. This current study builds power
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How Community-Based Health and Social Care Professionals Support Unpaid Caregivers: Experiences From One Health Authority in Ontario, Canada Qualitative Health Research (IF 4.233) Pub Date : 2024-02-29 Jodi Webber, Marcia Finlayson, Kathleen E. Norman, Tracy J. Trothen
In Ontario, Canada, rising rates of caregiver distress have been the ‘canary in the coal mine’ for a health system out of balance with the needs of an ageing population. Community-based health and social care professionals are well placed to play an important role in the caregiver support process; however, a gap has remained in the understanding of if and how caregiver support strategies are operationalized
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Listening to the Voices of Health Care Workers During the COVID-19 Pandemic: A Qualitative Study Providing In-Depth Insights Into Ethical and Individual Challenges Qualitative Health Research (IF 4.233) Pub Date : 2024-02-26 Barbara Buchberger, Heide Weishaar, Megan Evans, Rike Böttcher, René Umlauf, Swetlana Muminow, Eloisa Montt Maray, Nadine Muller, Souaad Chemali, Brogan Geurts, Hanna-Tina Fischer, Charbel El Bcheraoui
In their daily practice, health care workers (HCWs) experience the effects of tensions between professional ethos and work realities, which can lead to ethical dilemmas. We aim to explore the ethical dilemmas that affected HCWs in Germany during the COVID-19 pandemic and to understand these in the context of the German health system. Between April and December 2022, we interviewed HCWs from various
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Family Member Experiences in Intensive Care Units Care: Insights From a Family Involvement Tool Implementation Trial Qualitative Health Research (IF 4.233) Pub Date : 2024-02-10 Janet Alexanian, Ian Fraser, Orla Smith, Simon Kitto
Family involvement is widely considered an important part of patient care in the intensive care unit. From professional health care organizations, government, and hospital associations, there has been a cultural shift toward family presence as part of a wider commitment to patient-centered care. At the same time, the meaning and impact of family involvement in the intensive care unit setting remain
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“I Am Half of a Person”: Lived Experiences of Individuals Living With Ostomy After Surgery in Rural Haiti Qualitative Health Research (IF 4.233) Pub Date : 2024-02-09 Maurice J. Chery, Rebecca Henderson, Kobel Dubique, Adler Camilus, Henry Claude Eliacin, Jacquemine Pinard, Eric Toussaint, Mary Clisbee
Intestinal ostomy can have significant effects on lives and lived experiences. However, limited research exists on the experiences of persons with ostomy in low-resource settings, such as rural Haiti. This study aimed to explore the lived experiences of Haitians with an ostomy, focusing on the physical, psychological, and social aspects of their post-operative lives. We conducted 9 semi-structured
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Photos Sculpt the Stories of Youth: Using Photovoice to Holistically Capture the Lived Experiences and Pain of Youth Who Underwent Spinal Fusion Surgery Qualitative Health Research (IF 4.233) Pub Date : 2024-02-08 Samantha Noyek, Gillian Newman, Abbie Jordan, Kathryn A. Birnie, Melanie Noel
Spinal fusion surgery is one of the most common major surgical procedures in youth. Adolescent idiopathic scoliosis (AIS) is the most frequent reason for corrective spinal fusion. AIS (∼25%–47% of cases) and spinal fusion surgeries are associated with pain, including the development of new onset chronic pain for up to 15% of youth. This research used photovoice approaches to explore the journeys of
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Significance of an Interprofessional Healthy Aging Program for Community-Dwelling Older Adults: A Narrative Study Qualitative Health Research (IF 4.233) Pub Date : 2024-02-07 Wanda I. Colón-Ramirez, Rosa L. Román-Oyola, Bárbara Segarra-Vazquez, Karla J. Mercado-Rolón, Emanuel Dávila Collazo, Alma J. Camacho-Martínez, Lypzia M. Vélez-Jiménez
Participation is widely recognized as an important health determinant for older adults. Exploring interventions to promote active participation of community-dwelling older adults is an important step in translating current knowledge into practice. Few studies have examined community-level interventions to support older adults’ participation. The study purpose was to examine the significance of the
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The Effects of Stigma: Older Persons and Medicinal Cannabis Qualitative Health Research (IF 4.233) Pub Date : 2024-02-02 Sherry Dahlke, Jeffrey I. Butler, Kathleen F. Hunter, Madeline Toubiana, Maya R. Kalogirou, Shovana Shrestha, Rashmi Devkota, Joanna Law, Melissa Scheuerman
Cannabis has long been stigmatized as an illicit drug. Since legalization in Canada for both medical and recreational purposes, older adults’ cannabis consumption has increased more than any other age group. Yet, it is unclear how the normalization of cannabis has impacted perceptions of stigma for older adults consuming cannabis medicinally. Qualitative description was used to elucidate the experiences
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Mothering a Child With Complexity and Rarity: A Narrative Inquiry Exploring Prader-Willi Syndrome Qualitative Health Research (IF 4.233) Pub Date : 2024-01-29 Genevieve Currie, Andrew Estefan, Vera Caine
Daily experiences of mothers caring for children with Prader-Willi syndrome (PWS) are largely unknown and unvoiced. Knowledge of PWS has generally focused on pathology of the disorder. This emphasis overlooks the challenging moments of everyday life caring for children with PWS. Storied accounts of mothers caring for children with PWS offer expanded narratives to medicalized descriptions of experience
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A Qualitative Model of Weight Cycling Qualitative Health Research (IF 4.233) Pub Date : 2024-01-25 Lynsey Romo, Sydney Earl, Katelin A. Mueller, Mary Obiol
Weight cycling is a likely consequence of striving to lose weight after internalizing body image ideals, making upward social comparisons, and experiencing weight stigma. Despite weight cycling’s potential physical and psychological consequences, the interplay of weight cycling, social pressures, and experienced and internalized stigma have not been qualitatively explored. Thus, through in-depth interviews
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“Sense for Gambling” Among Jewish Ultra-Orthodox Men With Gambling Disorder Qualitative Health Research (IF 4.233) Pub Date : 2024-01-24 Noa Vana, Yael Itzhaki-Braun, Belle Gavriel-Fried
Making sense of the social world is an intricate process heavily influenced by cultural elements. Gambling is a prevalent leisure-time activity characterized by risk-taking conduct. While some individuals who engage in it do so without experiencing any harm, others will develop gambling problems. Judaism tends to perceive gambling negatively since it contradicts fundamental Jewish principles. The current
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A Pianist’s Technique Rehabilitation After Post-Traumatic Stress: An Autoethnographic Study Qualitative Health Research (IF 4.233) Pub Date : 2024-01-22 Carla Lewis, Liesl van der Merwe
Individuals suffering from post-traumatic stress disorder (PTSD) have access to a number of sources detailing the neuropsychological effects and influence of PTSD on their day-to-day lives. While the information on the effects and influence of PTSD may be helpful in understanding the scope of the disorder, there is a lack of knowledge on how to rehabilitate musicians, specifically pianists, who experience
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Through the Eyes of a Young Carer: A Photo Elicitation Study of Protective Resilience Qualitative Health Research (IF 4.233) Pub Date : 2024-01-22 Tamsyn Hawken, Julie Barnett, Julie M. Gamble-Turner
Caregiving is recognised as a source of stress with potential for negative health impacts as well as positive outcomes and development of resilience. For young carers, children, and adolescents providing care for close family members, adaptation through resilience is crucial, yet work using a resilience approach is limited. This study explored protective factors and pathways to resilience in a sample
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“My Scar”: Posttraumatic Loneliness as a Source of Pain and Resource for Coping Qualitative Health Research (IF 4.233) Pub Date : 2024-01-20 Shai Shorer, Michael Weinberg, Yael Koko, Doron Marom
Contemporary understanding of combat trauma’s psychological effects emphasizes the interpersonal ways survivors process their experiences. Yet cases of incongruence between survivors who want to share their traumatic experience and close others who are not ready to take part in this challenging task are common. Hence, many trauma survivors are compelled to cope with the posttraumatic consequences mostly
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Learning to Communicate: A Photovoice Study With Intensive Care Residents During Night Shifts in the Intensive Care Unit Qualitative Health Research (IF 4.233) Pub Date : 2024-01-19 Diana Quintero, Natalia Reinoso Chávez N, Juliana Vallejo
This study explored the learning experiences of intensive care residents in an intensive care unit (ICU) during night shifts and the development of communication skills in this community of practice. This action research qualitative study used the photovoice method in four workshops. A group of nine residents shared their learning experiences and collectively analyzed, built, and presented proposals
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Bearing (Aguantando) With Intimate Partner Violence: A Grounded Theory Study of Self-Silencing Among Hispanic Women Who Experienced Intimate Partner Violence Qualitative Health Research (IF 4.233) Pub Date : 2024-01-18 María José Baeza, Joseph P. De Santis, Rosina Cianelli, Nicholas Metheny, Natalia Villegas
Hispanic women who experience intimate partner violence (IPV) face unique disparities. They have poorer health outcomes and are less likely to seek help than their non-Hispanic counterparts. When women remain in relationships where IPV occurs and refuse to disclose or seek treatment, they may resort to self-silencing, which can also worsen health outcomes. The purpose of this study was to develop a
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Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings: Insights From Women With Lived Experience of Homelessness Qualitative Health Research (IF 4.233) Pub Date : 2024-01-18 Gustav Bockgård, Elisabet Mattsson, Louise von Essen, Anna Klarare
Interviews with individuals experiencing homelessness can be challenging for various reasons, including mental and physical health issues, substance use, and negative experiences with authority figures. Researchers have used photos to facilitate communication and empower participants during data collection. We analyzed data from a previous study to explore the use of researcher-generated photos during
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Turning a Curve: How People Use Everyday Resources to Negotiate Recovery From Cancer Treatment With Curative Intent Qualitative Health Research (IF 4.233) Pub Date : 2024-01-17 Alison Bravington, Miriam Johnson, Una Macleod
Many more cancers are treated with intent to cure now than in previous decades, but for most, this involves significant effects from which people need to recover psychologically and socially, as well as physically. This longitudinal photo-elicitation interview study uses grounded theory to explain how people discharged from specialist care made use of everyday social and material resources to manage
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From a Single Voice to Diversity: Reframing ‘Representation’ in Patient Engagement Qualitative Health Research (IF 4.233) Pub Date : 2024-01-17 Brett Scholz, Lucy Kirk, Terri Warner, Lauren O’Brien, Zsuzsoka Kecskes, Imogen Mitchell
There has been a growing emphasis on consumer representation in the development of health policy, services, research, and education. Existing literature has critiqued how discourses of representativeness can disempower consumers working in health systems. The context of the current study is consumer engagement in the development of COVID-19 triage policy and practice in a local health service. Consumer
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Cosmetic Medical Tourists’ Use of Online Support Communities: Sharing Information, Reciprocity, and Enduring Relationships Qualitative Health Research (IF 4.233) Pub Date : 2024-01-17 Rowena Forsyth, Tushar Prasad
Cosmetic procedures are amongst the most popular procedures sought after by medical tourists. Cosmetic medical tourists utilise numerous sources of information when planning their trips including, where available, discussing their decision with previous medical tourists. Current research on online support communities has investigated the interactions of patients with various health conditions with
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Understanding Barriers and Facilitators to Living Kidney Donation Within a Sociotechnical Systems Framework Qualitative Health Research (IF 4.233) Pub Date : 2024-01-17 Rachel Crenshaw, Cary Woods, Naoru Koizumi, Hitarth S. Dave, Monica Gentili, Jason J. Saleem
The objective of this study was to investigate factors influencing one’s decision to become a live kidney donor under the framework of sociotechnical systems, by expanding the focus to include larger organizational influences and technological considerations. Semi-structured interviews were conducted with live kidney donors who donated through University of Louisville Health, Trager Transplant Center
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A Better Me? An Interpretative Phenomenological Analysis of the Experiences of Female Cancer Survivors’ Heightened Preoccupation With ‘Healthy Eating’ Qualitative Health Research (IF 4.233) Pub Date : 2024-01-17 Elodie Eisenberg, Daphne Josselin
The end of treatment is known to be a particularly challenging time for many cancer survivors as they transition to coping with their condition independently. They may engage in health behaviours, such as implementing drastic dietary changes to manage the side effects of treatment they have undergone or as a way to assuage their anxiety. Understanding cancer survivors’ heightened preoccupation with
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A Qualitative Study on Psychosocial Challenges of Patients With Cancer in Ethiopia Using the Social-Ecological Model Qualitative Health Research (IF 4.233) Pub Date : 2024-01-17 Abigiya Wondimagegnehu, Mathewos Assefa, Solomon Teferra, Eva J. Kantelhardt, Bradley Zebrack, Adamu Addissie
Cancer diagnosis and treatment can be physically arduous, disrupting patients’ social and work lives. Understanding the extent of these problems is key to addressing patients’ needs, but specific psychosocial challenges have not yet been well studied in resource-limited settings. A qualitative study was conducted in the capital and two regions of Ethiopia with the aim of exploring psychosocial challenges
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Understanding the Narratives of Child Sexual Abuse Qualitative Health Research (IF 4.233) Pub Date : 2024-01-16 Mari Dalen Herland
This qualitative study consisted of in-depth, retrospective interviews with participants over the age of 18 who experienced child sexual abuse. Through narrative analysis, study findings shed light on three overall findings: the perception of memories, the perception of grooming, and the perception of the lived lives of child sexual abuse survivors. Findings suggest that the narratives elicited from
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Exploring the Methodological Benefits and Challenges of Utilising a Photovoice Methodology With Individuals in Recovery From Problem Substance Use Qualitative Health Research (IF 4.233) Pub Date : 2024-01-11 Emma Smith, Melody Carter, Elaine Walklet, Paul Hazell
Photovoice is a type of visual research method which supports participants to reflect upon their experiences by capturing digital images. It is a methodology that is routinely used with groups that could be considered vulnerable, as a way of allowing participants to tell their stories for themselves. This article details the process of conducting a Photovoice study with individuals in recovery from
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Ready to Go Home? Nurses’ Perspectives of Prolonged Admission for Patients Undergoing Video-Assisted Thoracic Surgery for Non-Small-Cell Lung Cancer in Denmark Qualitative Health Research (IF 4.233) Pub Date : 2024-01-10 Malene Missel, Pernille Orloff Donsel, René Horsleben Petersen, Malene Beck
Enhanced recovery after surgery programs with median postoperative hospitalization of 2 days improve outcomes after lung cancer surgery. This article explores nursing care practices for patients with lung cancer who remain hospitalized despite having recovered somatically. Qualitative focus group interviews were conducted with 16 nurses. Ricoeur’s phenomenological hermeneutics underpins the methodology
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“100 Things I Wish Someone Would Have Told Me”: Everyday Challenges Parents Face While Caring for Their Children With a Tracheostomy Qualitative Health Research (IF 4.233) Pub Date : 2024-01-09 Jules Sherman, Kyle L. Bower, Kolaleh Eskandanian
Equitable access to appropriate care, emergency department services, and in-home support aids are needed to minimize the occurrences of adverse events that have a significant impact on families. However, many families of children with medical complexity (CMC) lack consistent care due to issues of health inequity. We conducted 11 qualitative interviews with primary caregivers who were asked about their
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“I Haven’t Told Anyone but You”: Experiences and Biopsychosocial Support Needs of People With Type 2 Diabetes and Binge Eating Qualitative Health Research (IF 4.233) Pub Date : 2024-01-06 Pil Lindgreen, Ingrid Willaing, Loa Clausen, Khalida Ismail, Helle Nergaard Grønbæk, Charlotte Humble Andersen, Frederik Persson, Bryan Cleal
Up to 25% of people with type 2 diabetes (T2D) may binge eat which is almost 10 times as many as in the general population. Binge eating is associated with depression, anxiety, and social isolation. Moreover, binge eating may increase the risk of obesity and high blood glucose levels, both of which can accelerate the onset of complications to diabetes and death in people with T2D. Still, little is
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Experiences of Fathers in Norway Attending an Online Course on Therapeutic Writing After the Death of a Child. Qualitative Health Research (IF 4.233) Pub Date : 2023-12-01 Olga V Lehmann,Trine Giving Kalstad,Robert A Neimeyer
After the unexpected death of a child, bereaved parents require prompt access to helpful support systems. Online therapeutic writing courses can make such support accessible. Because few studies have included bereaved fathers as participants, we explored the experiences of fathers whose children died unexpectedly and who were part of an online course of therapeutic writing in Norway. We piloted two
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Qualitative Systematic Literature Review: Participatory Visual Methods in Community Health Interventions With Migrants. Qualitative Health Research (IF 4.233) Pub Date : 2023-12-01 Frederikke Sissel Blohm,Marie Honoré Jacobsen,Sarah Fredsted Villadsen,Catharina Thiel Sandholdt
This systematic review investigates how participatory visual methods (PVMs) (1) are applied in community health interventions (CHIs) with adult migrant populations and (2) identify potentials for participation. The search was performed in PubMed in 2021 and 2023. Eighteen articles fulfilled inclusion criteria as they investigated a CHI targeting migrants and used a visual method. We excluded articles
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"There's So Much More Support We Could Have Provided": Child Life Specialists' Stories of the Challenges Working in Adult Oncology. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-30 Shipra Taneja,Meredith Vanstone,David L Lysecki,Heather McKean,Daryl Bainbridge,Jonathan Sussman,Monica Molinaro
A cancer diagnosis in patients who are parents of minor children is uniquely stressful for both parents and children. Children need developmentally appropriate information and support to help reduce their fears and worries. Child life specialists (CLSs) are health professionals who work in pediatric environments to support children and families with the stress and uncertainty of illnesses. Increasingly
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"Somewhere Between an Actual Disease and a Disease": A Grounded Theory Study on Diagnosing Functional Neurological Disorders From a Multi-Informant Perspective. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-30 Francesca Sireci,Valentina Moretti,Francesco Cavallieri,Silvia Ferrari,Valentina Minardi,Francesca Ferrari,Giulietta Luul Balestra,Luca Ghirotto,Franco Valzania
Functional Neurological Disorders are characterized by sensory-motor or cognitive symptoms. Recent research has revealed their complex nature involving biological, psychological, and social factors. Care requires a multidisciplinary approach, which, to date, has yet to be considered. A Constructivist Grounded Theory study was conducted to understand the reasons behind this, exploring Functional Neurological
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StigmaBeat: Collaborating With Rural Young People to Co-Design Films Aimed at Reducing Mental Health Stigma. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-29 Rochelle Hine,Brenda Gladstone,Andrea Reupert,Lotti O'Dea,Rose Cuff,Scott Yates,Anneli Silvén Hagström,Violette McGaw,Kim Foster
Little is known about the experience and impact of intersectional stigma experienced by rural young people (15-25 years) who have a parent with mental health challenges. The StigmaBeat project employed a co-design approach to create short films to identify and challenge mental health stigma from the perspective of young people who have experienced this phenomenon. The aim of this paper is to describe
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Fragility and Resilience: Stories of Recovering From Hip Fractures in the Oldest-Old Age. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-29 Bodil Tveit
This study uses a narrative approach to explore the experiences of adults in the oldest stage of old age after they suffered a hip fracture. The focus was on participants' perceptions and descriptions of the traumatic event, the recovery process, and the impact of the fracture on their lives. The study had a longitudinal design and included interviews with 10 participants (mean age 89) who had suffered
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Living With Toxic Wounds: The Voices and Visual Self-Representations of Gulf War Veterans. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-29 Rebekka Dieterich-Hartwell,Bani Malhotra,Aslı Arslanbek,Bryann DeBeer,Tabitha Alverio,Girija Kaimal
Operations Desert Shield and Storm occurred over 30 years ago, yet many of those who were deployed continue to experience chronic and debilitating symptoms, now recognized as Gulf War Illness (GWI). While efforts have been made to explore clinical treatments for GWI, misperceptions and skepticism about its complex nature and a lack of consensus on its etiology impede progress in this area. A critical
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A Discourse of Deviance: Blame, Shame, Stigma and the Social Construction of Head and Neck Cancer. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-29 Carla Thamm,Alexandra L McCarthy,Patsy Yates
Cancer of the head and neck is a confronting condition, as the disease and its treatments alter the appearance and function of body organs associated with physical appearance and identity. Many of the risk factors for head and neck cancers, including tobacco, alcohol, and human papilloma virus, can also have significant negative social and moral permutations. Language and action (discourse) plays an
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Structural Factors Contributing to Compassion Fatigue, Burnout, and Secondary Traumatic Stress Among Hospital-Based Healthcare Professionals During the COVID-19 Pandemic. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-27 Ana A Chatham,Liana J Petruzzi,Snehal Patel,W Michael Brode,Rebecca Cook,Brenda Garza,Ricardo Garay,Tim Mercer,Carmen R Valdez
High levels of burnout among healthcare providers (HCPs) have been a widely documented phenomenon, which have been exacerbated during the COVID-19 pandemic. In the United States, qualitative studies that are inclusive of HCPs in diverse professional roles have been limited. Therefore, we utilized a qualitative-quantitative design to examine professional quality of life in terms of compassion fatigue
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A Lasting Impression: Exploring the Meaningfulness of a Singular Moment. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-27 Michael van Manen
How do we explore the meaning and meaningfulness of a singular event that lives on with us as a lasting impression? What are the initial beginnings and final endings of such living moments? How do we make sense of the significance of events that are so meaningful that they have become a lasting impression. This paper focuses on the phenomenology of such lasting impressions, by drawing on an exemplary
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Five Coffin Nails to Informed Consent: An Autoethnography of Suffering Complications in Breastfeeding. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-25 Corinna Klingler
This autoethnography describes an illness episode caused by breastfeeding complications. It focuses on informed consent processes accompanying this illness episode. Informed consent is a cornerstone of ethical medical practice and has to be obtained before a medical intervention can legally be implemented. It is therefore not trivial that in practice, informed consent processes often fail to achieve
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Community Caring for a Family Member With Brain Injury: Women's Lived Experiences. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-24 Cynthia R O'Donoghue,Cara Meixner
Individuals with a brain injury often require a caregiver to live safely in a community-based setting. This role typically defaults to a woman family member. Under the auspices of a constructivist interpretive tradition that honors a desire-based approach, this study blended narrative inquiry and grounded theory to explore the lived experiences of women caring for loved ones with brain injury. Twenty
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New Mothers With Postpartum Depression: A Qualitative Exploration of Healthcare Decision-Making. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-24 Lisa Borrero,Aimee Dietsch,Laura E Santurri,Heidi H Ewen
Postpartum depression (PPD) is a significant health issue for many new mothers in the weeks and months following a child's birth. Quantitative data suggest that a mother's PPD negatively impacts healthcare decision-making for the child via routine well-baby visits and pediatric care. However, little is known from a qualitative perspective about the factors that challenge or facilitate these healthcare
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'That Sounds to Me Like You Are Making This Too Complicated …': Reflections on a Social Media Recruitment Effort for a Study on Masculinities and Contraception. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-24 Julia Zielke,Jan Marc Morawe,Alev Nazli Aktan,Céline Miani
This reflection focuses on the methodological and ethical challenges encountered during the recruitment stage in a focus group and interview study that sought to investigate how men (co-)construct (their) masculinity in the context of contraception and family planning. We critically engage with the comments sections of our social media recruitment announcements and draw lessons in regard to (i) the
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Living With Endometriosis: A Reflexive Thematic Analysis Examining Women's Experiences With the Irish Healthcare Services. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-21 Ayisha Lightbourne,Sarah Foley,Maria Dempsey,Mary Cronin
Endometriosis is an incurable chronic condition associated with debilitating pain and subfertility, affecting 1 in 10 women. The current study aims to explore the perceptions and experiences of women with endometriosis regarding the diagnosis, support and treatment options available in Ireland. It will further determine whether additional supports or improvements are needed to care well and effectively
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Mapping MAiD Discordance: A Qualitative Analysis of the Factors Complicating MAiD Bereavement in Canada. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-16 Kristie Serota,Daniel Z Buchman,Michael Atkinson
Medical assistance in dying (MAiD) is an evolving practice in Canada, with requests and outcomes increasing each year, and yet controversy is present-with a vast spectrum of ethical positions on its permissibility. International research indicates that family members who experience disagreement over their loved one's decision to have MAiD are less likely to be actively involved in supporting patients
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'A Constant Black Cloud': The Emotional Impact of Informal Caregiving for Someone With a Lower-Grade Glioma. Qualitative Health Research (IF 4.233) Pub Date : 2023-11-15 Ben Rimmer,Michelle Balla,Lizzie Dutton,Joanne Lewis,Richéal Burns,Pamela Gallagher,Sophie Williams,Vera Araújo-Soares,Tracy Finch,Linda Sharp
Those closest to people with lower-grade gliomas (LGGs) often assume the role of informal caregiver (IC). The additional responsibilities mean ICs of people with cancer can experience adverse impacts on their own lives. We explored the emotional impact of informal caregiving for people with LGGs. This was a descriptive qualitative study within the multi-method Ways Ahead project. We conducted semi-structured