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Mothers’ Perspectives on Sexual and Reproductive Health and Rights of Adolescents with Intellectual and Developmental Disabilities in Kerala, India

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Abstract

Sexual and reproductive health and rights (SRHR) are fundamental for human well-being and development. This descriptive phenomenological study examines the mothers’ perspectives on SRHR of adolescents with intellectual and developmental disabilities (IDD). The study involved 21 participants selected through purposive sampling, and data saturation criteria were applied. Data was gathered through face-to-face, semi-structured, in-depth interviews. The participants were from backgrounds marked by poor socio-economic conditions that may have influenced their experiences and perceptions. The study identifies key themes, including “neglect and denial of sexual and reproductive health education (SRHE),” “fear of sexual abuse,” and “healthcare inequity.” It is essential to prioritize inclusive SRHE and ensure accessible healthcare services. The paper discussed social work implications also. In this scenario, it is crucial to enable parents and educators with the knowledge for informed discussions—needed innovative interventions aimed at promoting the SRHR of adolescents with IDD.

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Data Availability

The data supporting the findings of this study are available upon reasonable request from the corresponding author. Due to ethical and privacy considerations, the raw data are not publicly accessible. Requests for access to the data will be considered, and interested parties may contact the corresponding author's email for more information.

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Acknowledgements

The authors especially thank all the participants of the study. The authors are grateful to the services and support of BUDS school teachers and local self-government institutions, who helped in the successful conduct of this study.

Funding

University Grants Commission, F.15-6(DEC.2018)/2019(NET), Rosna Vincent.

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Correspondence to Rosna Vincent.

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Vincent, R., Nalini, R. & Krishnakumar, K. Mothers’ Perspectives on Sexual and Reproductive Health and Rights of Adolescents with Intellectual and Developmental Disabilities in Kerala, India. J. Hum. Rights Soc. Work 9, 83–92 (2024). https://doi.org/10.1007/s41134-023-00290-z

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  • DOI: https://doi.org/10.1007/s41134-023-00290-z

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