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Auditory time perception impairment in children with developmental dyscalculia Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-04-25 Elisa Castaldi, Francesca Tinelli, Gasperini Filippo, Mariaelisa Bartoli, Giovanni Anobile
Developmental dyscalculia (DD) is a specific learning disability which prevents children from acquiring adequate numerical and arithmetical competences. We investigated whether difficulties in children with DD spread beyond the numerical domain and impact also their ability to perceive time. A group of 37 children/adolescent with and without DD were tested with an auditory categorization task measuring
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Modelling for disability: How does artificial intelligence affect unemployment among people with disability? An empirical analysis of linear and nonlinear effects Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-04-24 Mehdi Abid, Ousama Ben-Salha, Karim Gasmi, Nasareldeen Hamed Ahmed Alnor
There is a growing debate among scholars regarding the impact of artificial intelligence (AI) on the employment opportunities and professional development of people with disability. Although there has been an increasing body of empirical research on the topic, it has generally yielded conflicting findings. This study contributes to the ongoing debate by examining the linear and nonlinear effects of
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A systematic review of factors that impact reading comprehension in children with developmental language disorders Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-04-24 Joseph Hin Yan Lam, Molly A. Leachman, Amy S. Pratt
Children with developmental language disorder (DLD) have a high rate of co-occurring reading difficulties. The current study aims to (i) examine which factors within the Active View of Reading (AVR; Duke & Cartwright, 2021) apply to individuals with DLD and (ii) investigate other possible factors that relate to reading comprehension ability in individuals with DLD, outside the components in the AVR
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Identification and educational placement of students with intellectual disability in Ontario, Canada Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-04-20 Alexandra Minuk, Jordan Shurr
Little is known about the identification and educational placement of students considered to have intellectual disability in the Canadian context and, specifically, the province of Ontario. The purpose of this study was to describe trends in the school-based identification of students with mild intellectual disability and developmental disability based on the Ontario criteria over a 14-year period
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Employment needs of and barriers for Chinese youth and young adults with Autism Spectrum Conditions in Ontario, Canada Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-04-17 Hayley Hei Lam Cheng, Ashtyn Chau, Huberta Chan, Jackie Seto, Hayden Wong, Jeremiah So, Yvonne W. Leung, Anna Victoria Wong, Theodore C.K. Cheung
Cultural-based literature focusing on Asian autistic immigrants living in Western countries is very limited. The present study is a quality improvement exercise aiming to fill the gap by investigating the employment needs of and barriers for Chinese autistic youth and young adults in Ontario, Canada. 71 individuals diagnosed with autism and 24 diagnosed with other mental illnesses, aged 12–29, participated
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Examination of sensory reception and integration abilities in children with and without Prader-Willi syndrome Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-04-13 Debra J. Rose, Diobel M. Castner, Kathleen S. Wilson, Daniela A. Rubin
Good postural stability control is dependent upon the complex integration of incoming sensory information (visual, somatosensory, vestibular) with neuromotor responses that are constructed in advance of a voluntary action or in response to an unexpected perturbation. To examine whether differences exist in how sensory inputs are used to control standing balance in children with and without Prader-Willi
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Validation of the German version of the DSQIID in adults with intellectual disabilities Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-28 Daria Tarasova, Peggy Rösner, Shoumitro Deb, Tanja Sappok
An observer-rated screening questionnaire for dementia for people with intellectual disabilities (ID), DSQIID, was developed in the UK. So far, the German version has not yet been validated in adults with ID. We validated a German version of DSQIID (DSQIID-G) among adults with ID attending a German clinic. DSQIID-G was completed by the caregivers of 104 adults with ID at baseline (T1), 94 at six months
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Lexical skills and gesture use: A comparison between expressive and receptive/expressive late talkers Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-22 Caterina Verganti, Chiara Suttora, Mariagrazia Zuccarini, Arianna Aceti, Luigi Corvaglia, Arianna Bello, M. Cristina Caselli, Annalisa Guarini, Alessandra Sansavini
Studies on late talkers (LTs) highlighted their heterogeneity and the relevance of describing different communicative profiles. To examine lexical skills and gesture use in expressive (E-LTs) vs. receptive-expressive (R/E-LTs) LTs through a structured task. Forty-six 30-month-old screened LTs were distinguished into E-LTs (= 35) and R/E-LTs (= 11) according to their receptive skills. Lexical skills
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Parent perspectives following newborn screening resulting in diagnoses of fragile X syndrome or fragile X premutation Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-20 Allyson Corbo, Janice P. Tzeng, Samantha Scott, Emily Cheves, Heidi Cope, Holly Peay
Fragile X syndrome (FXS) is the most common inherited cause of intellectual disability. Early Check, a voluntary newborn screening study, screened 18,833 newborns for FXS over ∼3 years. Exploring parental attitudes and perspectives can provide insight to the potential future acceptability of public health screening. Mothers of infants who received a screen positive result for FXS (n = 6) or fragile
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The impact of raising a child with a developmental or physical health condition in Ethiopia Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-15 Anne de Leeuw, Wietske A. Ester, Mersha Kinfe, Fikirte Girma, Rehana Abdurahman, Tigist Zerihun, Atsede Teklehaimanot, Charlotte Hanlon, Hans W. Hoek, Rosa A. Hoekstra
Raising a child with a developmental disability or physical health condition can have a major impact on the lives of their families, especially in low-income countries. We explored the impact on such families in Ethiopia. A total of 241 child-caregiver dyads were recruited from two public hospitals in Addis Ababa, Ethiopia. Of these, 139 children were diagnosed with a developmental disability (e.g
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Challenges, practices, and impact of COVID-19 among mothers of children with autism spectrum disorder in cities and remote areas in Saudi Arabia Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-13 Abdulaziz Abdullah Alothman, Mona Tawakkul Ebrahim, Hesham Fathy Gadelrab
Mothers of children with autism spectrum disorder (ASD) across Saudi Arabia have experienced tremendous challenges during the COVID-19 pandemic. However, the challenges may be different for mothers living in a city compared to those living more remotely. We investigated challenges and practices related to COVID-19 and their impact among Saudi mothers of children with ASD in cities and remote areas
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Exploring the presence and impact of sensory differences in children with Developmental Coordination Disorder Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-13 Jennifer Keating, Catherine Purcell, Sarah A. Gerson, Ross E. Vanderwert, Catherine R.G. Jones
Children with Developmental Coordination Disorder (DCD) can experience sensory differences. There has been limited exploration of these differences and their impact on children with DCD. i) To explore the presence and impact of sensory differences in children with DCD compared to children without DCD; ii) To examine whether sensory differences are related to motor ability, attention deficit hyperactivity
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Factors affecting the attitudes of principals of saudi general education public schools toward the inclusion of students with disabilities Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-12 Mubarak S. Aldosari
Research has indicated that the attitudes of principals toward students with disabilities may affect the success of the implementation of inclusive programs in schools. This study was designed to address a gap in the research regarding Saudi principals’ attitudes toward inclusion. Relationships between attitudes and a number of variables were analyzed (i.e., gender, years of experience, level of school
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Role of child demographic, executive functions, and behavioral challenges on feelings about parenting among parents of youth with Down syndrome Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-12 Amanallah Soltani, Anna J. Esbensen
Living with a child with Down syndrome (DS) influences the entire family, including caregivers. This study examined positive and negative caregiver feelings about parenting youth with DS and to what extent children's demographic, cognitive, behavioral characteristics, and co-occurring medical conditions are associated with those parental feelings. Specifically, the mediatory role of child behavioral
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The development and validation of the “SENSE” − Sensory and Behavioral Modulation Questionnaire for adults Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-11 Batya Engel-Yeger
Sensory modulation is critical for interacting with the physical and social environment. When sensory input from the environment is not properly perceived and modulated, it may elevate arausability, avoidant behavior, impair function and wellbeing. Sensory modulation difficulties (SMD) are mainly reported during childhood and are related to neurodevelopmental conditions such as Attention-Deficit Hyperactivity
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Investigating the impact of developmental coordination difficulties across home, school, and community settings: Findings from the Australian Impact for DCD survey Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-11 Jess E. Reynolds, Gail A. Alvares, Jacqueline Williams, Elspeth Froude, Catherine Elliott, Sarah McIntyre, Andrew J.O. Whitehouse, Kiah L. Evans, Siobhan L. Reid, John Cairney, Melissa K. Licari
To evaluate the participation difficulties experienced by children with developmental coordination disorder (DCD) in home, school, and community environments. The Impact for DCD survey was completed by primary caregivers of 4–18-year-old children with DCD (or synonymous diagnosis) (n = 429). The greatest participation difficulties experienced at home included dressing, eating with utensils, self-care
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The experience of parenting a child with dyslexia – A UK perspective with single parents Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-08 Nicole Stephenson, Michael Falk Hvidberg, Miles Rogish
Dyslexia is a specific learning difficulty that affects the development of literacy and language-related skills, unrelated to intellectual ability. While the impact of parenting an individual with dyslexia (IWD) for married parents has been widely studied, little is known about the impact on single parents. This study explored the lived experiences of single parents of an IWD. Six female participants
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Promoting emotional and behavioral interventions in ASD treatment: Evidence from EPIGRAM, A naturalistic, prospective and longitudinal study Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-02 Carlotta Bettencourt, Nicole Garret-Gloanec, Hugues Pellerin, PereMorgane Péré, Giulio Bertamini, Maria Squillante, Fabienne Roos-Weil, Léa Ferrand, Anne-Sophie Pernel, Gisèle Apter, Mohamed Chetouani, Samuele Cortese, David Cohen
Prognostic factors from naturalistic treatment studies of children with Autism Spectrum Disorder (ASD) remain largely unknown. We aimed to identify baseline and treatment-related prognostic predictors at 1-year follow-up after Integrative Care Practices (ICPs). Eighty-nine preschool children with severe ASD were given ICP combining nine therapeutic workshops based on children’s needs. Participants
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Implementing ‘Transforming Care’ – The first two years of a pilot service for autistic adults experiencing mental health crisis warranting psychiatric admission Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-01 Mahdieh Allahdad, Emma Gluyas, Debbie Spain, Sarah Blainey, Sophie Doswell, Adanna Onyejiaka
Autistic adults are at increased risk of mental health difficulties; however Adult Mental Health Services (AMHS) often struggle to offer appropriate support to this group. Within England, Government initiatives, such as the ‘Transforming Care’ programme which included ‘Building the Right Support’ (NHS England, 2015) have promoted the need for AMHS to consider how they can better provide autism-informed
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Factors associated with mathematical capacity in children with Developmental Coordination Disorder Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-03-01 Eliane Dionne, Annette Majnemer, Miriam H. Beauchamp, Marie Brossard-Racine
Developmental Coordination Disorder (DCD) is a condition characterized by difficulties in motor planning and coordination and affects 5 to 6% of all school-aged children. Children with DCD frequently present with difficulties with academic activities such as handwriting. However, no study to date has comprehensively described mathematical capacity and its potential associated factors in this high-risk
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Parent–child interaction related to brain functional alterations and development outcomes in autism spectrum disorder: A study based on resting state-fMRI Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-24 Yang Xue, Han-yu Dong, Jun-yan Feng, Miao-shui Bai, Dan Li, Hong Yang, Fei-yong Jia
Limited study has investigated the influence of parent–child interaction on brain functional alterations and development outcomes of autism spectrum disorder (ASD) children. This pilot study aimed to explore the relationship between parent–child interaction, brain functional activities and development outcomes of ASD children. and Procedures: 653 ASD with an average age of 41.06 ± 10.88 months and
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Enhancing social outcomes in autistic youth: Assessing the impact of PEERS® booster sessions Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-23 Laura Maria Fatta, Dora Bianchi, Elizabeth A. Laugeson, Elina Veytsman, Giovanna Romano, Fiorenzo Laghi, Maria Luisa Scattoni
The Program for the Education and Enrichment of Relational Skills (PEERS®) is a social skills training program for autistic adolescents and those facing social challenges. Its efficacy has been established worldwide, including in Italy. Although booster interventions are a potentially valuable strategy to maintain improvements over time, there is currently no research on the efficacy of providing booster
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Individual variation in bilingual vocabulary in preschoolers with developmental language disorder Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-22 Lisa Verbeek, Tijs Kleemans, Constance T.W.M. Vissers, Eliane Segers, Ludo Verhoeven
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Effects of a highly intensive balance therapy camp in children with developmental coordination disorder – An intervention protocol Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-20 Silke Velghe, Eugene Rameckers, Pieter Meyns, Charlotte Johnson, Ann Hallemans, Evi Verbecque, Katrijn Klingels
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“It makes me a better person”: The unique experiences of parenting multiple children who experience neurodevelopmental disability Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-19 Sandy Thompson-Hodgetts, Marcela Barahona Ortega, Claire Anthony, Hayley McComish, Emily Sharp
Much research has explored how raising a child with a neurodevelopmental disability influences parents’ well-being. However, little research has focused on the unique experiences of parenting multiple children with neurodevelopmental disabilities. We explored the unique experiences of parenting multiple children with neurodevelopmental disabilities with a focus on mothers’ well-being and social participation
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Autism traits, social withdrawal, and behavioral and emotional problems in a Norwegian cohort of adolescents with rare genetic disorders Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-16 Johannes Boettcher, Stian Orm, Krister Westlye Fjermestad
Adolescents with rare genetic disorders represent a population that can be at risk in psychosocial terms. Despite its importance, the association of autism traits and social withdrawal in behavioral and emotional problems in adolescents with rare genetic disorders remains understudied. The study aimed to empirically examine the clinical characteristics of adolescents with rare genetic disorders with
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Sleep problems in a population-based cohort of primary school age children with Cerebral Palsy Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-15 Koa Whittingham, Kath Benfer, Leanne Sakzewski, Jane Wotherspoon, Andrea Burgess, Tracy Comans, Syed Afoz Keramat, Robert S. Ware, Roslyn N. Boyd
To examine sleep problems in a population-based sample of school-aged children (8–12yo) with Cerebral Palsy (CP) Eighty-six children (mean 9 years, 5 months, SD = 1 year, 6 months; male = 60) with CP (Gross Motor Function Classification System; GMFCS I=46; II=21; III=9; IV=6; V=6) participated. Classifications/assessments included: Sleep Disturbance Scale for Children (SDSC), Gross Motor Function Measure
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Parent coaching to enhance community participation in young children with developmental disabilities: A pilot randomized controlled trial Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-14 Chi-Wen Chien, Chung-Ying Lin, Cynthia Yuen Yi Lai, Fiona Graham
Parent coaching emerges as a preferred approach for enhancing performance and participation of children with developmental disabilities (DD), but limited clinical trials examine its effects on community participation. To evaluate whether parent coaching, specifically using Occupational Performance Coaching (OPC), enhances community participation among young children with DD. A pilot double-blind randomized
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Relationship between executive function and autism symptoms in preschoolers with autism spectrum disorder Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-14 Chun-Ling Ko, Chin-Kai Lin, Chien-Lin Lin
Executive dysfunction and other symptomatology could have links in preschoolers with autism spectrum disorder (ASD). This study contains three objectives: to explore the difference in executive function between preschoolers with ASD and typically developing individuals (TD), to investigate correlations between executive function and multiple domains of autism symptoms in preschoolers with ASD, and
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The role of stimulant washout status in functional connectivity of default mode and fronto-parietal networks in children with neurodevelopmental conditions Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-09 Kelsey Harkness, Signe Bray, Kara Murias
Stimulant medication is the primary pharmacological treatment for attention dysregulation and is commonly prescribed for children with Attention-Deficit/Hyperactivity Disorder (ADHD) and Autism. Neuroimaging studies of these groups commonly use a 24–48-hour washout period to mediate the effects of stimulant medication on functional connectivity (FC) metrics. However, the impact of washout on functional
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Enhancing inclusive education in the UAE: Integrating AI for diverse learning needs Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-08 Alia El Naggar, Eman Gaad, Shannaiah Aubrey Mae Inocencio
Artificial Intelligence (AI) mediated systems have become important in educational set-ups, and it is still debatable whether or not they can be useful in special needs education. This qualitative research scrutinizes the experiences and perceptions of exceptional learners, as an example of special needs education, engaged in AI-mediated discussions versus traditional classroom dialogues. The study
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Mobile sleep EEG suggests delayed brain maturation in adolescents with ADHD: A focus on oscillatory spindle frequency Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-07 Blanka Vojnits, Tárek Zoltán Magyar, Orsolya Szalárdy, Vivien Reicher, Mária Takács, Nóra Bunford, Róbert Bódizs
Attention-deficit/hyperactivity disorder (ADHD) is a prevalent neurodevelopmental disorder. Although data show ADHD is associated with sleep problems, approaches to analyze the association between ADHD and sleep electrophysiology are limited to a few methods with circumscribed foci. Sleep EEG was analyzed by a mixed-radix FFT routine and power spectrum parametrization in adolescents with ADHD and adolescents
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Better at home or in residential care? Victimization of people with intellectual disabilities at the hands of caregivers Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-03 Marta Codina, Diego A. Díaz-Faes, Noemí Pereda
People with intellectual disabilities often need assistance of some kind in their everyday life. Support needs can increase the risk of their victimization at the hands of professional and family caregivers. This paper explores the differences in caregiver victimization between participants living in residential care settings and those who are not. A sample of 260 adults (59.2 % men) with an intellectual
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Atypical sensory processing in adolescents with Attention Deficit Hyperactivity Disorder: A comparative study Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-02-01 Rosa Angela Fabio, Caterina Orsino, Flavia Lecciso, Annalisa Levante, Rossella Suriano
Atypical sensory processing is common in Attention Deficit Hyperactivity Disorder (ADHD). Despite growing evidence that ADHD symptoms persist into adolescence, the sensory processing of individuals with ADHD in this age group is limited. The aim of this study was to assess differences in self-reported sensory experiences between adolescents with and without ADHD. One hundred thirty-eight Italian adolescents
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“It’s a learning curve throughout your entire life”: Experiences and impact of FASD in adolescence explored in online photovoice research Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-01-30 Miranda Eodanable, Sinead Rhodes, Katie Cebula
Background Research into the lived experience and disability of Fetal Alcohol Spectrum Disorder (FASD) is sparse in adolescence, despite its relevance to supports and life outcomes. Aims The study explored adolescents’ lived experiences of FASD and access to support across home, school, and community. Methods and Procedures An online photovoice study was undertaken with eight young people (age 12–19
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Parental quality of life, child adjustment and adult attachment in parents of children and adolescents with Autism Spectrum Disorder Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-01-27 Alessandro Musetti, Andrea Zagaria, Mattia Pezzi, Chiara Fante, Barbara Dioni, Cinzia Raffin, Tommaso Manari, Vittorio Lenzo, Raffaele De Luca Picione
Background Parents of children and adolescents with Autism Spectrum Disorder (ASD) may experience a lower quality of life (QoL) than parents of offspring with typical development. However, factors associated with parental QoL are not yet fully understood. Aims This study aimed to investigate the relationships between parental QoL, child adjustment and adult attachment among parents of children and
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Rules generalization in children with dyslexia Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-01-26 Roberta Bettoni, Valentina Riva, Massimo Molteni, Viola Macchi Cassia, Hermann Bulf, Chiara Cantiani
Background Rule learning (RL) is the ability to extract and generalize higher-order repetition-based structures. Children with Developmental Dyslexia (DD) often report difficulties in learning complex regularities in sequential stimuli, which might be due to the complexity of the rule to be learned. Learning high-order repetition-based rules represents a building block for the development of language
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Print and digital reading habits and comprehension in children with and without special education needs Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-01-23 Cristina Vargas, Lidia Altamura, Mari Carmen Blanco-Gandía, Laura Gil, Amelia Mañá, Sandra Montagud, Ladislao Salmerón
Background Text comprehension is a major obstacle for many Primary school students with special education needs (SEN). Reading episodes bring students opportunities to be exposed to new vocabulary and knowledge, potentially boosting their development of text comprehension skills. Aims Our study seeks to understand how reading frequency (leisure and academic) and reading medium (print and digital) contribute
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Developmental, sensory and behavioral outcomes among infants and toddlers with prenatal alcohol exposure Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-01-22 Misty Pruner, Tracy Jirikowic, Carolyn Baylor, Susan J. Astley Hemingway
Background Prenatal alcohol exposure (PAE) can disrupt children’s neurodevelopment and exert lasting influences on overall child well-being and family functioning. A comprehensive exploration of developmental outcomes in infants/toddlers with PAE seen for a diagnosis on the fetal alcohol spectrum can inform early identification and intervention. Aims To describe the prevalence and patterns of neurodevelopment
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Navigation abilities and spatial anxiety in individuals with and without Developmental Coordination Disorder (DCD/Dyspraxia) Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-01-25 Judith Gentle, Afreen Shakur, Mirela Ivanova, Katie Gilligan-Lee
Background Navigation skills are essential for independent living as they allow us to explore our environment; find our way to new locations, refine pathways to familiar locations and retrace our route home. Alongside motor coordination difficulties, there is evidence that individuals with Developmental Coordination Disorder (DCD/Dyspraxia) experience spatial processing difficulties, which are known
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Motor difficulties from childhood to midlife: A 40-year cohort study Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-01-18 Ilkka Järvinen, Jyrki Launes, Jari Lipsanen, Eliisa Lehto, Nella Schiavone, Maarit Virta, Ritva Vanninen, Annamari Tuulio-Henriksson, Laura Hokkanen
Background There are few studies of the persistence of childhood motor difficulties (MD) into adulthood. Aims To investigate the association of childhood MD with motor skills and body mass index (BMI) in midlife. Methods and procedures We studied 324 adults aged 40 from a cohort born in 1971–1974. At age 9, they had undergone the Test of Motor Impairment, used to classify them into groups: childhood
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A systematic review on the use of technology to enhance the academic achievements of children with attention deficit hyperactivity disorder in language learning Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-01-18 Georgia Andreou, Ariadni Argatzopoulou
This review investigates the use of technology for children and adolescents with Attention Deficit Hyperactivity Disorder and their academic achievements in language learning, as well as their attitudes towards technology use. The goal is to integrate this information in order to learn how technology is provided to this population regarding first and second language learning, and also how effective
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Evaluating the challenges and needs of parents caring for children with Williams syndrome: A preliminary study from Poland Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-01-11 Jan Domaradzki, Dariusz Walkowiak
Background Although physical, cognitive and behavioural manifestations of Williams syndrome (WS) affect every dimension of caregivers lives, no studies on the parental experiences of caring for a WS child have to date been carried out in Poland. Methods In order to identify the challenges and needs of Polish carers of WS children a survey was conducted with 32 family caregivers who were supported by
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Letter to the Editor: Journals need to make space for narratives from people with lived experience Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-01-06 Jill G. Zwicker, Kathryn Sutton, Jenise Boland, Aerin Grace, Linda Casey
Abstract not available
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The impact for DCD – USA study: The current state of Developmental Coordination Disorder (DCD) in the United States of America Res. Dev. Disabil. (IF 3.0) Pub Date : 2024-01-03 Priscila Tamplain, Haylie L. Miller, Derrick Peavy, Sharon Cermak, Jacqueline Williams, Melissa Licari
Background Developmental Coordination Disorder (DCD) is among the most under-recognized and under-supported disorders worldwide. Aims To present a preliminary national study that evaluated the unmet needs of children with DCD in the USA using the Impact for DCD survey. Methods and procedures 232 parents of individuals aged 5–18 years provided responses from 36 items in five domains (diagnosis, activity/participation
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Psychosocial wellbeing, parental concerns, and familial impact of children with developmental coordination disorder Res. Dev. Disabil. (IF 3.0) Pub Date : 2023-12-30 Vincent O. Mancini, Melissa K. Licari, Gail A. Alvares, Matthew C. McQueen, Sarah McIntyre, Jess E. Reynolds, Siobhan L. Reid, Alicia J. Spittle, Jacqueline Williams
Background Developmental Coordination Disorder (DCD) is a neurodevelopmental condition impacting motor skill acquisition and competence. While previous studies have identified adverse psychosocial outcomes in DCD, they are limited by small or population-screened, community-based samples. Aims To understand the psychosocial difficulties, parental concerns, and familial impacts of childhood DCD in a
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Short report: Autistic symptoms in Sotos syndrome, preliminary results from a case-control study Res. Dev. Disabil. (IF 3.0) Pub Date : 2023-12-26 Assia Riccioni, Martina Siracusano, Lucrezia Arturi, Chiara Scoppola, Marialaura Ferrara, Ilaria Frattale, Cinzia Galasso, Leonardo Emberti Gialloreti, Luigi Mazzone
Background An extremely heterogeneous neuropsychological phenotype has been reported in Sotos Syndrome (SoS), including socio-communicative and behavioral difficulties referred to Autism Spectrum Disorder (ASD). Nonetheless, to date, only few data are available on the topic. Aim To investigate ASD symptoms within a sample of children with SoS in comparison to a matched control group of individuals
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Cross-sectional developmental trajectories in the adaptive functioning of children and adolescents with Down syndrome Res. Dev. Disabil. (IF 3.0) Pub Date : 2023-12-22 Sara Onnivello, Chiara Locatelli, Francesca Pulina, Giuseppe Ramacieri, Chiara Marcolin, Francesca Antonaros, Beatrice Vione, Francesca Catapano, Silvia Lanfranchi
Background Persons with Down syndrome (DS) reveal adaptive functioning (AF) difficulties. Studies on AF in DS have focused mainly on describing the profile (i.e., strengths in socialization, and weaknesses in communication), while less is known about age-related differences. This study aimed to elucidate how AF changes with age in children and adolescents with DS, taking a cross-sectional developmental
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Caregiver burden and mental health: Parent perspectives when raising a child with developmental coordination disorder Res. Dev. Disabil. (IF 3.0) Pub Date : 2023-12-22 Erin S. Klein, Carrie Cheung, Angie Garces, Skye Barbic, Jill G. Zwicker
Background Children with Developmental Coordination Disorder (DCD) are at high risk for mental health disorders, stemming from challenges participating in motor activities. Parents of children with DCD report increased caregiver burden exacerbated by insufficient support and services for their child. A paucity of literature exists on parent and child mental health associated with a DCD diagnosis. Aims
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Short report: Siblings of children with neurodevelopmental disorders, a phenomenological perspective on parental perception Res. Dev. Disabil. (IF 3.0) Pub Date : 2023-12-14 Miriam Paola Pili, Serena Grumi, Carola Isella, Luisa Vercellino, Elisa Baroffio, Silvia Borgatti, Sara Robbioni, Andrea Dondi, Renato Borgatti, Livio Provenzi
Background Siblings, typically developing brothers and sisters of children with neurodevelopmental disorders (NDD), are at risk for long-term psychosocial difficulties. Objective The present study aims at obtaining an in-depth insight on the lived experience of siblings of children with NDD through their parents’ perspective. Methods Seven mothers and three fathers who signed up their sibling children
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Intact or impaired? The understanding of give-and-take interactions in children with autism spectrum disorder Res. Dev. Disabil. (IF 3.0) Pub Date : 2023-12-06 Wenwen Hou, Jing Li
Background Understanding and predicting others’ behavior in a dynamic and rapidly changing world is a fundamental aspect of social interactions. However, it remains unclear as to whether children with autism spectrum disorder (ASD) could understand and predict goal-directed social actions. Aims To investigate the understanding of give-and-take interactions in children with ASD with the use of eye tracking
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How developmental coordination disorder affects daily life: The adolescent perspective Res. Dev. Disabil. (IF 3.0) Pub Date : 2023-12-05 Fouziah Khairati, Natalie Stewart, Jill G. Zwicker
Background Few studies have focused on the implications of developmental coordination disorder (DCD) in the teen years. Understanding the unique needs of adolescents with DCD and the challenges they face are imperative to inform clinical care. Aim To understand how DCD affects daily life from adolescents living with the disorder. Methods Participants were recruited from a database of adolescents who
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The role of executive functions in mediating the relationship between adult ADHD symptoms and hyperfocus in university students Res. Dev. Disabil. (IF 3.0) Pub Date : 2023-11-30 Miguel Garcia Pimenta, Rixa Käthe Gruhnert, Anselm B.M. Fuermaier, Yvonne Groen
Background Hyperfocus, a state of intense, narrow and prolonged attentional focus, has been associated with symptoms of attention-deficit/hyperactivity disorder (ADHD) in both clinical and non-clinical populations. Hyperfocus may be explained by difficulties in executive control, typically observed in ADHD. Aims To investigate (1) whether ADHD and executive functions (EF) are associated with hyperfocus
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Selective short-term memory impairment for verbalizable visual objects in children with Developmental Language Disorder Res. Dev. Disabil. (IF 3.0) Pub Date : 2023-11-29 Martyna Bryłka, Hanna B. Cygan
Background Developmental language disorder (DLD) affects the ability to acquire and make use of native language. Possible underlying cognitive mechanisms are related to memory functions. Aims The aim was examination of the relationship between visual short-term memory of objects as well as audiovisual short-term memory, and particular nonverbal and language abilities. Methods and procedures The study
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The educational and psychosocial needs of students with additional provisions during COVID-19 in Greece: Parents’ perspectives against schools’ crisis management Res. Dev. Disabil. (IF 3.0) Pub Date : 2023-11-22 Anastasia Vlachou, Aristea Fyssa, Filippos Papazis, Anastasia Toulia, Theodora Papazoglou, Lia Tsermidou, Stavroula Kalaitzi
Background The sudden breakdown of educational and care services following the COVID-19 outbreak caused severe implications to the educational and psychosocial well-being of students with additional needs. Aim The present study investigates the perspectives of parents of students requiring additional provisions in relation to the schools’ responsiveness against their children’s educational and psychosocial
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Parental report of early features of developmental coordination disorder: A qualitative study Res. Dev. Disabil. (IF 3.0) Pub Date : 2023-11-17 Amy De Roubaix, Dominique Van de Velde, Hilde Van Waelvelde
Background Developmental Coordination Disorder (DCD) is a neurodevelopmental condition usually diagnosed after five years of age. Aims To evaluate parent-reported early markers of DCD between birth and six years of age. Methods and procedures In-depth semi-structured interviews were conducted with parents of twelve children diagnosed with DCD. Up to three interviews were performed per family. The interviews
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Prevalence of psychological problems among caregivers of children and adolescents with neurodevelopmental disorders during the COVID-19 pandemic: A meta-analysis and systematic review Res. Dev. Disabil. (IF 3.0) Pub Date : 2023-11-16 Xuan Gu, Xiao Shan, Lan Wang, Wen-Ying Gao, Xiao-Qin Liu
Background The COVID-19 pandemic impacted children and adolescents with neurodevelopmental disorders, which caused difficulties and increased caregivers’ burden. Aim The objective of this study was to assess the prevalence of psychological problems among caregivers of children and adolescents with neurodevelopmental disorders. Methods and procedures We searched the PubMed, Embase and Web of Science
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Visuomotor adaptation, internal modelling, and compensatory movements in children with developmental coordination disorder Res. Dev. Disabil. (IF 3.0) Pub Date : 2023-11-14 Elisa Knaier, Claudia E. Meier, Jon A. Caflisch, Reto Huber, Tanja H. Kakebeeke, Oskar G. Jenni
Background Developmental coordination disorder (DCD) is one of the most prevalent developmental disorders in school-aged children. The mechanisms and etiology underlying DCD remain somewhat unclear. Altered visuomotor adaptation and internal model deficits are discussed in the literature. Aims The study aimed to investigate visuomotor adaptation and internal modelling to determine whether and to what